Living a full life with Li-Fraumeni syndrome

https://www.facingourrisk.org/XRAY/living-with-LFS

Full article: https://www.uchealth.org/today/defeating-5-cancers-living-with-li-fraumeni-syndrome/

This XRAY review is about a five-time cancer survivor who has an inherited mutation in the TP53 gene. People with inherited mutations in TP53 have Li-Fraumeni syndrome, which is linked to a very high lifetime risk for many types of cancer. Here we share his inspiring story and provide more information on Li-Fraumeni syndrome. (Posted 4/16/24)

Este artículo está disponible en español.

Questions To Ask Your Health Care Provider

Do you have experience managing care for people with TP53 mutations?
If not, can you refer me to a center that does?
Do you recommend genetic testing to determine whether I have a hereditary mutation?
If I test positive for a hereditary cancer gene mutation, how will you work with me to prevent cancer or find it early?
Do you follow national guidelines for monitoring people with Li-Fraumeni syndrome?

About FORCE

FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.