Living a full life with Li-Fraumeni syndrome

https://www.facingourrisk.org/XRAY/living-with-LFS

Full article: https://www.uchealth.org/today/defeating-5-cancers-living-with-li-fraumeni-syndrome/

This XRAY review is about a five-time cancer survivor who has an inherited mutation in the TP53 gene. People with inherited mutations in TP53 have Li-Fraumeni syndrome, which is linked to a very high lifetime risk for many types of cancer. Here we share his inspiring story and provide more information on Li-Fraumeni syndrome. (Posted 4/16/24)

Questions To Ask Your Health Care Provider

Do you have experience managing care for people with TP53 mutations?
If not, can you refer me to a center that does?
Do you recommend genetic testing to determine whether I have a hereditary mutation?
If I test positive for a hereditary cancer gene mutation, how will you work with me to prevent cancer or find it early?
Do you follow national guidelines for monitoring people with Li-Fraumeni syndrome?

About FORCE

FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.