FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘HBOC’

September 11, 2018

We All Love a Good Book or Movie

Some books and movies make us think.  Some make us laugh or cry. Some are educational and others are just plain fun.  And, then some do all of the above.  Below is a list of personal memoirs, self-help and reference books created to share information and stories of those who have experienced hereditary cancer. You … + read more

July 11, 2018

Where’s FORCE? May and June

by Lisa Schlager “Where’s FORCE” features an overview of the many places our staff and volunteers have been and the many ways we have spoken out for the community in the past couple of months. May “Financial Toxicity” is a term used to describe the impact of health care costs on patients and their families. … + read more

June 17, 2018

Solving for Y: Reaching Men About Genetic Testing for Hereditary Breast, Ovarian, Pancreatic, Prostate And Related Cancers (HBOC)

by Sue Friedman Half of all people with an inherited BRCA, ATM, CHEK2, PALB2 or other mutation associated with HBOC are men. Nevertheless, the majority of awareness, research, and resources have focused on genetic testing in women. A recent article in JAMA highlights this disparity in BRCA testing between men and women. Emerging information on … + read more

May 30, 2018

Where’s FORCE? March and April

by Lisa Schlager “Where’s FORCE” highlights the ongoing efforts of FORCE staff and volunteers on behalf of the community. March As a member of the Bayer Oncology Patient Advocacy Advisory Council (PAAC), FORCE Vice President of Public Policy Lisa Schlager joined representatives from other advocacy groups and Bayer to review project proposals submitted by nonprofit … + read more

May 21, 2018

FORCE Earns 4-Star Rating on Charity Navigator

By Karen Kramer, Senior Vice President of Marketing We have some exciting news to share! Non-profit evaluator Charity Navigator has awarded FORCE our first 4-star rating. This is their highest possible rating and indicates that we exceed industry standards in a financially responsible way. Charity Navigator bases its ratings on non-profits’ financial health and commitment … + read more

May 14, 2018

Patrick Dempsey Presents CURE Media Ovarian Cancer Hero Awards

by Karen Kramer, FORCE Senior VP of Marketing “It’s a beautiful day to save lives.” That phrase was often said by Patrick Dempsey’s character—Dr. Derek Shepherd (aka “McDreamy”)—on Grey’s Anatomy.  It is a statement that resonates with me and has been a guiding principle for FORCE since the organization’s founding in 1999 by Sue Friedman, … + read more

May 11, 2018

Battling BRCA: International Conference in Iceland on BRCA and Cancer

by Kristín Hannesdóttir and Anna Margrét Bjarnadóttir On March 10th, BRCA Iceland hosted its first international conference. Sue Friedman, Executive Director, Founder of FORCE, was the keynote speaker. In June 2017, we attended the FORCE conference in Orlando. We barely knew each other at the time, but we are both BRCA2 carriers, have lost several … + read more

April 27, 2018

The Lights of May

Special note: In honor of Mother’s Day 2018, we’re recycling this post that was originally published in 2012. This inspirational post is as relevant as when first written 6 years ago.  by Sue Friedman We were late.  The last hint of twilight faded and although we were close to home, I was nervous.  It was … + read more

March 19, 2018

Where’s FORCE? Early 2018

by Lisa Schlager Throughout the year, FORCE staff and volunteers participate in a variety of conferences, workshops, steering committee meetings, and more on behalf of the hereditary cancer community. This “Where’s FORCE” feature covers the early part of 2018. January January marked the start of the New Year, and renewed focus on issues that impact … + read more

February 7, 2018

Why I Chose Immunotherapy for Pancreatic Cancer

by David Dessert I was diagnosed with stage 3 unresectable pancreatic cancer at age 48 after 5 months of ever-increasing back and abdominal pains. After a non-standard treatment with Gemzar/Cisplatin chemotherapy (because of my BRCA2 mutations), followed by chemoradiation, and 12 months later the removal of my pancreatic tumor, my surgeon told me that I … + read more

December 12, 2017

Book: Understanding BRCA

by Clarissa Foster Three years ago, at the age of 35, I was found to carry a harmful mutation in the BRCA2 gene. I decided to undergo removal of both ovaries and tubes (known as a salpingo-oophorectomy) and a risk-reducing mastectomy to lower my risk of developing cancer. When it was established that I was … + read more

November 2, 2017

When Breast Cancer Treatment Ends: Thoughts On “Can Breast Cancer Come Back?” XRAYS Review

by Jennifer Hintz Note:  Jennifer’s story was submitted in response to our recent XRAY review published July 2017: Can Breast Cancer Come Back? If you have would like to submit a blog post related to one of our XRAYS articles, please contact medhas@facingourrisk.org. I was thrilled to finally hear the words from my oncologist: “You’ve done … + read more

October 23, 2017

No Longer Alone: 1000 People Benefit from Personalized Cancer Risk Support

by Sandy Cohen Unfortunately, my story is not that uncommon. I’m a motherless daughter. I lost my mom to breast cancer when I was 26 years old. And she lost her mom to the disease before she graduated high school. This all occurred before the BRCA1 mutation was even discovered. Today, thanks to FORCE’s programs, … + read more

August 22, 2017

100th XRAYS: 5 Lessons We Have Learned

by Lisa Rezende, PhD and Julie Huynh, MS Today we celebrate the publication of our 100th XRAYS review. It’s amazing to think how the program we developed over the past three years has grown to serve over 70,000 people affected by breast cancer. We knew the need was there. We saw how catchy headlines like … + read more

May 11, 2017

Fueling Patient-Focused Health Care

by Melanie Nix I know a woman who has hereditary breast and ovarian cancer (HBOC) syndrome. She is a triple negative breast cancer survivor. She has a BRCA1 gene mutation and is the fifth generation in her family to have breast cancer. She lost her youngest aunt to ovarian cancer after multiple battles with both … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered