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Hereditary Cancer Info > Privacy & Legal Issues > Types of Legal Protections

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Types of Legal Protections

There are laws that protect the rights of people with an inherited mutation or hereditary cancer.

Other Websites

Know Your Rights: A Resource for People with Cancer and their Loved Ones
A comprehensive overview of legal protections for people diagnosed with cancer, focusing on health insurance coverage of treatment.

Center for Consumer Information and Insurance Oversight (CCIIO) at CMS
This is the agency consumers can contact for help when they feel they have been inappropriately denied services or were inappropriately charged a co-pay or deductible counter to the Patient Protection and Affordable Care Act. They run a helpline:

Direct: (410) 786-1565
Toll free: (887) 267-2323 ext. 6-1565

or email at:
Website administered by the U.S. Department of Health & Human Services which provides information about health care and insurance provisions.

Genetic Information Nondiscrimination Act Website
Website developed by the Genetic Alliance which provides an introduction to the Genetic Information Nondiscrimination Act and its protections in health insurance and employment. It includes answers to common questions about GINA.

National Partnership for Women and Families
A public education and advocacy group, offers another good introduction to issues, legislative protection that currently exists at the federal and state level, and bills that have been introduced in Congress.

U.S. Equal Employment Opportunity Commission
The organization responsible for enforcing the American with Disabilities Act. The EEOC may be able to help some, but not all, applicants and employees who believe they have been subjected to genetic discrimination.

Department of Labor’s Employee Benefits Security Administration
The website of the Department of Labor’s Employee Benefits Security Administration has helpful information about the PPACA and other laws that affect health care.

Patient Advocate Foundation
A national nonprofit organization that serves as an active liaison between patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys.

Cancer Legal Resource Center
The Cancer Legal Resource Center provides information and education about cancer-related legal issues to the public through its national telephone assistance line.

Cancer + Careers page on filing for disability due to cancer
Cancer + Careers has some good info on filing for disability due to cancer and extensive resources on the legal & financial implications of cancer

FORCE:Facing Our Risk of Cancer Empowered