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Hereditary Cancer Info > Privacy & Legal Issues > Genetic Information Nondiscrimination Act (GINA)

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Genetic Information Nondiscrimination Act (GINA)

There are laws that protect the rights of people with an inherited mutation or hereditary cancer.

Related Force Information

New Wellness Program Rules Undermine Patient Privacy and Protections
FORCE responds to rules issued in 2016 by the U.S. Equal Employment Opportunity Commission (EEOC) weaken protections against invasion of medical privacy and significantly weaken workplace and
health insurance discrimination safeguards afforded by the Americans with Disabilities Act
(ADA) and Genetic Information Nondiscrimination Act (GINA).

Hereditary Cancer, Insurance, and Your Legal Rights
Webinar recorded in November, 2014 by Anya Prince, JD of the Center for Genomics and Society at the University of North Carolina Chapel Hill that outlines the laws that protect individuals from genetic discrimination, the current regulations that affect insurance coverage for preventative services, breast reconstruction, and other treatments, and how to initiate an insurance appeal.

GINA in the Age of Precision Medicine
Review of a 2015 perspective article published in the New England Journal of Medicine on the success of GINA in protecting patients.

Proposed Regulatory Changes Will Undermine Patient Protections Under GINA
2015 blog with update on proposed changes in laws that will weaken GINA protections within employer wellness programs.

Genetic Information, Privacy & Discrimination
Brochure about GINA protections, written in collaboration with the National Society of Genetic Counselors.

GINA Update
This webinar from 2010 highlights the protections from genetic discrimination afforded by the Genetic Information Nondiscrimination Act (GINA).

Webinar presented by Jennifer R. Leib, Sc.M., C.G.C. Partner, HealthFutures LLC (a CRD Associates Company) focusing on the protections afforded by the Genetic Information Nondiscrimination Act (GINA) and the gaps that remain after its enactment.

Other Websites

Genetic Information Nondiscrimination Act Website
Website developed by the Genetic Alliance which provides an introduction to the Genetic Information Nondiscrimination Act and its protections in health insurance and employment. It includes answers to common questions about GINA.

U.S. Equal Employment Opportunity Commission
The organization responsible for enforcing the American with Disabilities Act. The EEOC may be able to help some, but not all, applicants and employees who believe they have been subjected to genetic discrimination.

FORCE:Facing Our Risk of Cancer Empowered