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Hereditary Cancer Info > Privacy & Legal Issues > Patient Protection and Affordable Care Act (PPACA)

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Patient Protection and Affordable Care Act (PPACA)

There are laws that protect the rights of people with an inherited mutation or hereditary cancer.

Related Force Information

Hereditary Cancer, Insurance, and Your Legal Rights
Webinar recorded in November, 2015 by Anya Prince, JD of the Center for Genomics and Society at the University of North Carolina Chapel Hill that outlines the laws that protect individuals from genetic discrimination, the current regulations that affect insurance coverage for preventative services, breast reconstruction, and other treatments, and how to initiate an insurance appeal.

An Advocacy Win for Cancer Survivors Facing HBOC
June 2015 blog outlines the expansion of provisions under the PPACA coverage for genetic counseling and testing to include cancer survivors who are asymptomatic and not currently in treatment.

Insurance Coverage for Cancer Genetic Counseling
Fall 2011 Joining FORCEs Newsletter article about how insurance companies are required to cover genetic counseling as part of preventive care under the Health Care Reform Act.

Other Websites

Center for Consumer Information and Insurance Oversight (CCIIO) at CMS
This is the agency consumers can contact for help when they feel they have been inappropriately denied services or were inappropriately charged a co-pay or deductible counter to the Patient Protection and Affordable Care Act. They run a helpline:

Direct: (410) 786-1565
Toll free: (887) 267-2323 ext. 6-1565

or email at:
Website administered by the U.S. Department of Health & Human Services which provides information about health care and insurance provisions.

National Partnership For Women and Families
A public education and advocacy group, offers another good introduction to issues, legislative protection that currently exists at the federal and state level, and bills that have been introduced in Congress.

Department of Labor’s Employee Benefits Security Administration
The website of the Department of Labor’s Employee Benefits Security Administration has helpful information about the PPACA and other laws that affect health care.

Patient Advocate Foundation
A national nonprofit organization that serves as an active liaison between patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys.

State Insurance Regulators
Find the links to your state's Department of Insurance.

Cancer Legal Resource Center
The Cancer Legal Resource Center provides information and education about cancer-related legal issues to the public through its national telephone assistance line.

FORCE:Facing Our Risk of Cancer Empowered