FORCE and researchers at the University of South Florida formed the ABOUT Patient-Powered Network to help advance hereditary cancer research through collaborations. See below for more information about each project, FORCE's role, and the status of the research.
Marleah Dean Kruzel
Type of Research:
Cancer Screening and Prevention,Quality of Life
START: Developing and Pilot Testing a Graphic Novel for Men at Risk for Hereditary Cancer
Men with inherited gene mutations are at an increased risk for developing hereditary cancers including breast, prostate, pancreatic, and melanoma. However, managing clinical care for men at-risk for BRCA-related cancers is challenging because they are often not aware of their own hereditary cancer risks and are uncertain oftheir family members’ cancer risks. There are gaps in medical information available to men regarding their hereditary cancer risks. .. Developing tailored resources to help men understand their risks and meet their emotional needs can decrease their uncertainty and improve their health outcomes.
The goal of this study is to develop and pilot test a graphic novel to increase men’s hereditary cancer knowledge, manage their uncertainty, and assist them in making health and familial decisions. We will work with men with BRCA mutations who are willing to share their real life experiences to guide these efforts.
- Develop a graphic novel designed for men at risk for BRCA-related cancers to increase men’s hereditary cancer knowledge, manage their uncertainty, and assist them in making health and familial decisions
- Receive feedback from men to ensure the graphic novel resonates with men at risk for BRCA-related cancers
Role of FORCE and ABOUT
Two FORCE volunteers serve as male patient advocates on the research team, assisting with developing the graphic novel as well as helping recruit participants. FORCE will also assist with recruiting eligible participants by sharing the information about the study. Finally, upon study completion, FORCE will contribute to the sharing the study findings with the hereditary cancer community.
This research is relevant for:
High risk men
Men who test positive for an inherited mutation