Energetics and Lifestyle in Inherited Syndromes (ELLIE’s Study)

Research Cycle:
Conduct Research

Lead Researcher:
Lauren Nye, MD
University of Kansas Medical Center

Type of Research:
Quality of Life,Cancer Screening and Prevention

Energetics and Lifestyle in Inherited Syndromes (ELLIE’s Study)


Weight plays a role in cancer risk and outcomes in people with and without inherited mutations. In order to design weight loss strategies to improve cancer outcomes, we need to study biomarkers related to metabolism and cancer risk in people with inherited mutations.

Study aims

ELLIE’s Study aims to gain a better understanding of the baseline lifestyle factors related to nutrition and physical activity in people with a hereditary cancer gene mutation in order to develop ways to improve health outcomes.

This study is in the early pilot stage. We will collect survey data on diet, exercise and fitness from 1000 men and women with an inherited mutation.

FORCE and ABOUT Network role 

FORCE contributed to the design of the research study and the questionnaire. We currently helping researchers recruit for the study. If you would like to enroll in ELLIE’s Study, you can visit the research study page.

This research is relevant for:

People at high risk for cancer

People with a family history of cancer

People who test positive for an inherited mutation

Cancer survivors