Study Contact Information:
For more information, please visit genome.gov/GSRP. If you are interested in joining or want to see if you are eligible, please contact us by email or by phone at: 301-402-6871.
A new study is recruiting people who received unexpected genetic test results about their cancer risk after having genetic testing done for some other reason.
The Genomic Services Research Program (GSRP) is a study of people with "secondary results” from genetic testing. Secondary results are unexpected. They are not related to the reason the person had the genetic test but are shared because they may be very important to the person’s health. Most secondary results have to do with high risks for health problems that can be treated or prevented. Many of these results are related to cancer risk. If you think you have received a secondary result, you may be eligible to join this study.
The purpose of this study is to learn about what people think about and do with secondary results. If you or a member of your family have been given a secondary result, please consider partnering with us on this research. Together we hope to understand the health impacts of secondary results on you and your family and discover ways to better support people like you.
For more information, please visit genome.gov/GSRP.
We want to know what you do about your result.
We provide a basic explanation of your result and may offer more. You will get basic information about what your result means. You will also get a checklist of health actions you should take. You may get extra information, counseling or other support to get the healthcare that we recommend.
Help us improve care for future patients. Results like yours are added to genetic testing reports with the hope that they will make families aware of important health risks so they can get the healthcare they need. We know that this does not happen for all families. We intend for our results to help more patients benefit from these results. For example, we hope to learn what makes it hard for patients to get care that they need and how healthcare providers can help.
Please partner with us. Our study would not be possible without patients like you! Only 2 out of 100 people who have genetic testing get an unexpected result, so every patient is valuable to our project.
If you are interested in joining or want to see if you are eligible, please contact us by email at: [email protected], or by phone at: 301-402-6871 or visit this site and fill out the information on this form.
Common things that make someone ineligible for the study are:
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.