Energetics and Lifestyle in Inherited Syndromes (ELLIE’s Study)

Quality of Life

Study Contact Information:

 For questions about the study, please contact Lauren Nye, MD by email

About the Study

ELLIE’s Project is designed to look at factors that may affect cancer risk in people with inherited mutations linked to cancer. The study will look at weight, Body Mass Index, metabolism, dietary habits and activity level over the course of people’s life-time.

ELLIE’s study aims to:

What the Study Entails

ELLIE’s study is a web-based survey. It is open to eligible people who have a personal email and internet access.  

The web-based survey can be accessed through this hyperlink

The first 1,000 participants will receive a $10.00 e-gift card. The e-gift card will be delivered by email.

Study Locations

The study was developed and designed by Lauren Nye, MD at the University of Kansas Medical Center in Kansas City, KS.  The study will be distributed digitally and can be completed by eligible participants as long as they have internet access.

Study Lead Investigator

This Study is Open To:


This Study is Not Open To:


FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.