PreCharge: Study Testing a Digital Program for People with Hereditary Cancer Syndromes
https://www.facingourrisk.org/research-clinical-trials/study/451 /precharge-study-testing-a-digital-program-for-people-with-hereditary-cancer-syndromes
Quality of Life
Study for previvors at risk for hereditary cancer who have not been diagnosed with cancer
Study Contact Information:
Contact Dr. Kerry Evers, the director of the study, or Madison Gilmore, the study project manager, at (888) 399-2117 or [email protected].
About the Study
The PreCharge study—funded by the National Cancer Institute (NCI)—is testing a digital program designed to help people with hereditary cancer syndromes who have not been diagnosed with cancer strengthen their coping skills, build resilience, and stay engaged in their healthcare. Eligible participants will complete brief online surveys over a 6-month period, and half of the participants will receive access to the PreCharge digital program.
Visit bridge-beacon.org/r/precharge-force to learn more and see if you qualify.
What the Study Involves
The PreCharge study is a 6-month randomized controlled trial. To get started, prospective participants will complete a brief online screening survey to determine whether they are eligible. Eligible participants will then complete a baseline survey. Survey technology will randomly assign participants to one of two groups.
One group will receive access to the PreCharge digital program, which includes online activities and text messages, for six months. Participants can spend as much or as little time as they want interacting with the program. The other group will not receive access to the program during the study but will complete the same follow-up surveys as the other group. Having these two groups will allow the researchers to compare them and determine whether the PreCharge program improves coping, resilience, and healthcare engagement.
All participants will complete a total of four surveys over six months: screening survey, baseline survey, 3-month follow-up survey, and 6-month follow-up survey. Each survey takes about 10 minutes to complete. Participants in both groups who complete the baseline, 3-month follow-up, and 6-month follow-up surveys will be compensated for their time.
Lead Researchers/Study PIs and Affiliation
PI: Kerry E. Evers, Ph.D.
Co-President and CEO of ProChange Behavior Solutions
This Study is Open To:
The PreCharge study team is looking to enroll individuals who:
- Are 18 years of age or older;
- Have a hereditary cancer syndrome but have not been diagnosed with cancer;
- Live in the United States; and
- Can read and speak English.
This Study is Not Open To:
People may not qualify if they:
- Are younger than 18.
- Have been diagnosed with cancer.
- Do not live in the United States.
- Cannot read and speak English.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.