Beyond a "Women's Gene": Assessing the Perception and Satisfaction Following Genetic Counseling for Males with a BRCA Mutation

https://www.facingourrisk.org/research-clinical-trials/study/450 /beyond-a-womens-gene-assessing-the-perception-and-satisfaction-following-genetic-counseling-for-male-brca-carriers

Surveys, Registries, Interviews
Survey for men with a BRCA1 or BRCA2 genetic mutation

Study Contact Information:

Delaney Bessel Master's Student
Genetic Counseling Program
Long Island University
Email: [email protected]

About the Study

The purpose of this study is to better understand the experiences of men who tested positive for a BRCA1 or BRCA2 genetic mutation. It aims to explore participants' experiences with genetic counseling and genetic testing, perceptions of hereditary cancer risk, concerns related to their diagnosis and factors that may influence adherence to recommended cancer screening guidelines.

Findings from this research may help improve genetic counseling services and develop resources tailored to the needs of males with a BRCA1 or BRCA2 mutation.

What the Study Involves

Participation in this study involves completing one anonymous online survey, which is expected to take approximately 20-30 minutes to complete.

Click here to participate or scan the QR code.

This Study is Open To:

Eligibility includes:

Individuals who are 18 years of age or older.
Individuals who have tested positive for a pathogenic or likely pathogenic BRCA1 or BRCA2 variant.
Individuals who identify as biologically male.

This Study is Not Open To:

You are not eligible if you:

Are under the age of 18.
Did not test positive for a pathogenic or likely pathogenic BRCA1 or BRCA2 variant.
Do not identify as biologically male.

About FORCE

FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.