Share Your Child's Genetic Diagnostic Journey
https://www.facingourrisk.org/research-clinical-trials/study/417 /share-your-childs-genetic-diagnostic-journey
Surveys, Registries, Interviews
Interview with Latino/a parents about their child's genetic care
Study Contact Information:
Please contact Linnete Arceo by email at [email protected]
About the Study
We’re inviting parents to take part in a research study exploring their experiences with their child’s genetic care. Through a one-on-one interview, we hope to learn how culture and family values have shaped that journey.
What the Study Involves
Participants will complete a short survey and a one-on-one interview.
This Study is Open To:
You may qualify if:
- 18+ years of age
- Identify as Latino/a
- Ability to communicate in English or Spanish
- Parent or caregiver of a child with a genetic condition
This Study is Not Open To:
You may not qualify if:
- Under 18 years of age
- Do not identify as Latino/a
- Cannot communicate in English or Spanish
- Are not a parent or caregiver of a child with a genetic condition
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.