Perceptions of Gastric Cancer Risk and Attitudes Toward Endoscopic Surveillance in People with CDH1 or CTNNA1 Mutations
https://www.facingourrisk.org/research-clinical-trials/study/390 /perceptions-of-gastric-cancer-risk-and-attitudes-toward-endoscopic-surveillance-in-people-with-cdh1-or-ctnna1-mutations
Surveys, Registries, Interviews
Online survey about gastric cancer risk and medical decision-making for people with an inherited CDH1 or CTNNA1 pathogenic variant
Study Contact Information:
If you have questions about the study, please contact the lead investigator, Swati G. Patel, MD, MS at 303-724-2441 or [email protected].
About the Study
The purpose of this study is to understand how people with inherited CDH1 or CTNNA1 mutations perceive their risk of gastric (stomach) cancer and their attitudes toward endoscopic surveillance and other medical options.
We invite you to complete an online survey. Sharing your experience may help improve provider knowledge and communication.
What the Study Involves
- A 20–30 minute confidential online survey about your experiences and perspectives related to CDH1/CTNNA1 and gastric cancer risk
- Survey responses will be de-identified and reported in summary form.
If you have questions about how your information will be used, please contact the study team.
Click here to take the survey or scan the QR code.
This Study is Open To:
This Study is Open To:
- Adults ages 18 and older
- People with a CDH1 or CTNNA1 mutation
- People who can complete an online survey in English
This Study is Not Open To:
This Study is NOT Open To:
- People under age 18
- People who do not have a CDH1 or CTNNA1 mutation
- People who cannot complete an English-language online survey
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.