Improving Support for Families with Genetic Conditions: A Study on Trauma-Informed Medical Care
https://www.facingourrisk.org/research-clinical-trials/study/383 /improving-support-for-families-with-genetic-conditions-a-study-on-trauma-informed-medical-care
Surveys, Registries, Interviews
Survey of parents and caregivers of children with genetic conditions
Study Contact Information:
Please email Dr. Kelsey Sala-Hamrick [email protected] or by phone at (734) 787-3383
About the Study
Families with genetic conditions often face unique medical stress. This study explores these experiences to improve how doctors provide supportive, trauma-informed care.
What the Study Involves
We are seeking caregivers of children with genetic conditions to complete a 30-minute confidential online survey. Participants may also join optional follow-up interviews.
To participate, please click here.
Compensation:
- Survey Raffle to win 1 of 6 $100 Amazon gift cards.
- Interview participants will each receive a $50 Amazon gift card.
- Caregivers gain access to Dr. Kelsey's virtual stress-reduction workshop.
This Study is Open To:
- Parent or caregiver of a child under the age of 18 with a genetic condition.
- Able to speak and read English.
- Reside in the United States.
This Study is Not Open To:
- Parents or caregivers of children without a genetic condition.
- Parents or caregivers of children over the age of 18.
- Unable to speak or read English.
- Does not live in the United States.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.