
https://www.facingourrisk.org/research-clinical-trials/study/382 /health-and-medicine-decision-making-study
Surveys, Registries, Interviews
Study for people diagnosed with a complex health condition such as cancer, diabetes or an autoimmune disorder
Study Contact Information:
Please contact Bryna Siegel Finer, PhD, by email at [email protected]
Researchers are conducting a study to better understand how people make important health decisions and how they feel about those decisions over time. The goal of this study is to learn what factors help patients feel confident and satisfied with their health-related decisions, as well as what may lead to regret or uncertainty later on.
Researchers are inviting people living with complex health conditions—such as cancer, diabetes, or autoimmune disorders—to share their experiences making medical decisions. Participants will be asked about how they worked with their healthcare providers and what resources or information helped them when making important choices about their care.
Insights from this study may help researchers and healthcare providers better understand how to support patients in making informed decisions about their health.
Participants will take part in a brief interview that includes approximately five questions about their experiences making health-related decisions.
If you are willing to be interviewed, please complete this brief form to schedule a time to talk.
Researchers are looking for individuals who:
Have not been diagnosed with a complex health condition (such as cancer, diabetes, or an autoimmune disorder)
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.