Exploring the Attitudes of Those Who Tested Positive for an Adult-Onset Cancer Predisposition as a Minor
https://www.facingourrisk.org/research-clinical-trials/study/316/exploring-the-attitudes-of-those-who-tested-positive-for-an-adult-onset-cancer-predisposition-as-a-minor
Survey and interview for people who tested positive for an adult-onset cancer predisposition as a minor
About the Study
NOTE: This study is no longer recruiting people.
Predispositional genetic testing in minors is a controversial discussion. While current guidelines encourage providers to defer testing until adulthood, many providers still permit this testing at the request of parents. This study aims to interview those who tested positive for an adult-onset cancer predisposition as a minor to highlight their attitudes regarding predispositional genetic testing in childhood. Results may help guide clinicians in how they approach and navigate conversations about genetic testing in presymptomatic minors.
This Study is Open To:
NOTE: This study is no longer recruiting people.
This Study is Not Open To:
NOTE: This study is no longer recruiting people.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.