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Ethical Challenges in Genetic Testing for Terminally Ill People and their Families

https://www.facingourrisk.org/research-clinical-trials/study/315/a-study-on-ethical-challenges-in-genetic-testing-for-terminally-ill-patients-and-their-families


Interview of palliative care patients and/or their adult family members who have been offered and involved in genetic testing or counseling

About the Study

NOTE: This study is no longer recruiting people. 

 

This study explores the ethical challenges and benefits of genetic testing in palliative care for terminally ill patients. It seeks to understand the experiences and decision-making of both patients and their family members. Participants, including palliative care patients or their adult family members, will complete a 1-hour virtual interview. 

 

This Study is Open To:

NOTE: This study is no longer recruiting people. 

This Study is Not Open To:

NOTE: This study is no longer recruiting people. 

About FORCE

FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.