FORCE Survey for People at Increased Risk for Breast or Gynecologic Cancer Due to an Inherited Mutation
https://www.facingourrisk.org/research-clinical-trials/study/287/survey-for-people-at-increased-risk-for-breast-or-gynecologic-cancer-due-to-an-inherited-mutation
Surveys, Registries, Interviews
Survey for people at high risk for breast and gynecologic cancer due to an inherited mutation
Study Contact Information:
For questions about the survey, please contact: Sue Friedman: [email protected]
About the Survey
FORCE is conducting a short survey to better understand the unmet needs of people who are at high risk for breast or gynecologic cancer due to an inherited mutation. We will use the results from this survey to develop new resources and advocate for better medical options to improve outcomes for our community. The survey is open to any adult who has had genetic testing and has been told at any time that they are at high risk for breast, endometrial, fallopian tube or ovarian cancer due to an inherited mutation.
What the Survey Involves
This is an anonymous survey that takes about 15 minutes for people to complete. Participants will be asked to complete general questions about their experiences with genetic counseling and testing, risk management and family caregiving. Participants will also be asked about additional resource needs.
You can take the survey here.
This Study is Open To:
The following people are eligible:
- Adults with an inherited mutation linked to breast, endometrial, fallopian tube or ovarian cancer risk.
This Study is Not Open To:
The following people are not eligible:
- People under age 18.
- People who are not at increased risk for any of these cancers.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.