Surveys, Registries, Interviews
Online survey for people with an ATM, BARD1, BRCA1, BRCA2, CDH1, CHEK2, PALB2, PMS2, PTEN, RAD51C, RAD51D, STK11, TP53 inherited mutation or Lynch syndrome.
Study Contact Information:
If you have any questions, feel free to contact the principal investigator, Mark Manning by Phone: (248) 370-2343 or email: [email protected]
Our study aims to evaluate the perceptions of an online health history-sharing platform by people with a personal or family history of cancers related to HBOC and Lynch syndrome. These cancers include pancreatic, prostate, melanoma, ovarian, uterine, stomach, small intestine, liver, kidney, gallbladder ducts, urinary tract, and brain. If you would like to know more about this study or participate, please follow the link below.
You will be asked to complete an online survey. The survey contains questions related to information about you, your personal beliefs, attitudes and perceptions, family communication, and your thoughts related to some brief videos that describe the platform. We encourage you to answer all questions to the best of your ability, though you may skip any questions you desire.
The survey should take approximately 20-30 minutes to complete.
For taking part in this research study, you will have the option to be entered into a “raffle” for one of ten $25 gift cards.
Department of Psychology
Wayne State University
Center for Molecular Medicine and Genetics
Phone: (248) 370-2343
Email: [email protected]
Individuals must be 18 years old and older with a personal or family history of cancers related to inherited mutations and Lynch syndromes including pancreatic, prostate, melanoma, ovarian, uterine, stomach, small intestine, liver, kidney, gallbladder ducts, urinary tract, and brain.
Individuals under 18 years old with other personal or family history of genetic conditions not related to inherited mutations or Lynch syndrome.
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.