Exploring the Psychosocial Implications of Individuals with a Genetic Test Result that was Later Reclassified
https://www.facingourrisk.org/research-clinical-trials/study/229/exploring-the-psychosocial-implications-of-individuals-with-a-genetic-test-result-that-was-later-reclassified
Prevention
Interview for people who's genetic test results were reclassified
Study Contact Information:
Grant Warren by phone: 720-291-6018 or by email at: [email protected]
About the Study
Researchers at Bay Path University are conducting virtual/phone interviews with individuals who have received a reclassified genetic test result to cancer related genes. This study will help researchers learn the psychosocial implications and experiences of those who have received a reclassified genetic test result when undergoing hereditary cancer gene testing (for example, your original genetic test results showed a variant of uncertain significance that was later found to be harmful or harmless).
This study is no longer enrolling people.
What the Study Involves
This study involves a 30-minute Interview by phone or video chat discussing their perspectives and experiences with the reclassification/modification of their genetic test result. Participants will be compensated for their time.
Lead Researchers
Grant Warren PI
Janice Berliner M.S. CGC, Director, Master of science in genetic counseling program at Bay Path University Laura Moreno M.S. CGC,
This Study is Open To:
This study is no longer enrolling people.
People can participate if they:
- are 18 years of age or older
- have a cancer genetic test result that was reclassified
This Study is Not Open To:
This study is no longer enrolling people.
- Individuals who have never received a genetic test result that was reclassified.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.