Factors Influencing Reproductive Decision-Making in Individuals with a BRCA1 or BRCA2 Gene Mutation

Surveys, Registries, Interviews
Survey for people with a BRCA1 or BRCA2 mutation

Study Contact Information:

Student Investigator: Shea Walsh, [email protected], 585-315-1783
Principal Investigator: Monika Zak-Goelz, [email protected], 516-299-3926

About the Study

This study will survey individuals with a mutation in the BRCA1 or BRCA2 gene. We are seeking experiences and opinions of individuals regarding childbearing and reproductive choices. This will allow healthcare professionals, especially genetic counselors, to learn about what information is needed due to psychosocial and medical factors. The survey is approximately 25 minutes long to complete and is available online.

Click here to participate: 

What the Study Involves

If you agree to be in this study, we will ask you to do the following things:

1. Review and Sign the Informed Consent (Approximately 10 minutes)

2. Complete the Survey (Approximately 25 minutes)

Will research test results be shared with you?

How long will you be in the study?

Lead Researchers/Study PIs and Affiliation

Student Investigator: Shea Walsh, [email protected]
Principal Investigator: Monika Zak-Goelz, [email protected], 516-299-3926
Long Island University Post – Masters of Science in Genetic Counseling
Institutional Review Board at Long Island University [email protected]

This Study is Open To:

To participate in the survey, you must be 18 years or older and have a mutation in the BRCA1 or BRCA2 gene.

This Study is Not Open To:


FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.