Surveys, Registries, Interviews
Survey for people with a BRCA1 or BRCA2 mutation
Study Contact Information:
Student Investigator: Shea Walsh, [email protected], 585-315-1783
Principal Investigator: Monika Zak-Goelz, [email protected], 516-299-3926
This study will survey individuals with a mutation in the BRCA1 or BRCA2 gene. We are seeking experiences and opinions of individuals regarding childbearing and reproductive choices. This will allow healthcare professionals, especially genetic counselors, to learn about what information is needed due to psychosocial and medical factors. The survey is approximately 25 minutes long to complete and is available online.
Click here to participate: https://www.surveymonkey.com/r/N6PJDHH
If you agree to be in this study, we will ask you to do the following things:
1. Review and Sign the Informed Consent (Approximately 10 minutes)
2. Complete the Survey (Approximately 25 minutes)
Will research test results be shared with you?
How long will you be in the study?
Student Investigator: Shea Walsh, [email protected]
Principal Investigator: Monika Zak-Goelz, [email protected], 516-299-3926
Long Island University Post – Masters of Science in Genetic Counseling
Institutional Review Board at Long Island University [email protected]
To participate in the survey, you must be 18 years or older and have a mutation in the BRCA1 or BRCA2 gene.
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.