BRCA 1 and 2: Interviews on Genetic Testing and Individual Experiences

Surveys, Registries, Interviews
People with or without cancer who have had or are considering BRCA testing

Study Contact Information:

Dr. Sharlene Hesse-Biber

[email protected]

About the Study

This study seeks to interview individuals who come from families with high cancer risk and/or who have tested positive for BRCA 1/2 genetic mutation. We are also interested in individuals who may be contemplating BRCA 1/2 genetic testing; those who feel they lack access to genetic testing or who feel they lack information and social and medical support with regard to getting access to genetic testing; those who have been diagnosed with breast cancer who may be at high risk for a range of hereditary cancer. We are especially hoping to reach racially and ethnically diverse males and females whose experiences are often left out of research studies.

Click here for English and Haga clic aquí para español to learn more or participate. Participants selected for an interview will receive a $40 Amazon gift card. 

What the Study Entails

Collected data will be kept in locked and encrypted data storage file. At no point will we publicly use any uniquely identifying information from your interview.

Lead Researchers/Study PIs and Affiliation

Lead Researcher: Sharlene Hesse-Biber

Professor of Sociology and Director, Gender and Women’s Studies

Affiliation: Boston College, 140 Commonwealth Avenue, Chestnut Hill, MA, 02467

This Study is Open To:

The participant guidelines for the study are as follows:

Any interview participant who fits any one of the above guidelines and is interested in the study can take our confidential survey! 

This Study is Not Open To:

People are not eligible if:


FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.