There are so many stories on FORCE and so many members willing to share their experiences. We hope these profiles can help you connect with our community and get advice from people like you!
BRCA 2 positive, hysterectomy, double mastectomy with reconstruction ( nipple sparing ) need to connect with others in my shoes!
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I was in pain for years and finally had a hysterectomy 2 years ago and removed a large cycst on my ovary right after my mom was diagnosed with stage 4 pancreatic cancer. She had breast cancer 23 years ago as well. We got genetically tested and found out we are BRCA2 positive. So I had another surgery to remove my ovaries I had kept in the hysterectomy surgery. I also had really bad endometriosis. I then decided to have a double mastectomy to reduce my risk of breast cancer. I was referred by my genetic counselor to a breast surgeon and plastic surgeon and used them to perform the surgery. I was told by my plastic surgeon that I was a good candidate for nipple sparing. I am six months post surgery and I would really like to connect with others in my shoes. I have so many questions and I wish I had done more research about the nipple sparing part. I am preparing for another surgery once I am recovered enough from this last surgery.
Making the decision to have a double mastectomy and having complications from that. Digesting the large amount of cancer that is in my family.
I would have researched more about this last surgery.
I have wanted to go to a meeting and connect with others live, but I have not had a chance. I have read many articles and appreciate the force community and would like to get more involved.