FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘hereditary cancer research’

March 5, 2012

Why Shouldn’t We Have It All?

As a 15-year breast cancer survivor, I remind myself daily of my good fortune and blessings. Of course, I feel fortunate to be a long-term survivor, especially when I consider that my cancer initially recurred nine months after treatment. I made it through chemotherapy and radiation without any serious problems, despite needing a transfusion and … + read more

March 1, 2012

13 Important Facts About Our Hereditary Cancer Research Fund

How many times have you been asked for YOUR INPUT on which types of research should be supported? As an important stakeholder in cancer research, it is your right to help guide the direction of research. Please help us advance hereditary cancer research by: reading the 13 facts listed below about our research fund, completing our … + read more

February 22, 2012

Exclusive gene patent on BRCA: Adding burden to an already overburdened community

The United States Patent and Trademark Office (USPTO) is gathering information on the impact of gene patenting on genetic diagnostic in order to prepare a report to Congress under the America Invents Act. The USPTO is soliciting public commentary on this important issue by organizing public hearings. This past Thursday, Lisa Schlager, Vice President of Community Affairs and Public Policy … + read more

January 18, 2012

Thirteen Ways FORCE will Serve Our Community in 2012

On New Year’s Day we celebrated FORCE’s 13th birthday! Over the course of this year, we will highlight the significance of this milestone with blogs that emphasize the theme of “13.” As my first blog of the new year, I am excited to share 13 things that FORCE will do to serve the hereditary cancer … + read more

August 22, 2011

FORCE is Preparing for 2011 National Hereditary Breast and Ovarian Cancer Week and National Previvor Day … and we hope you are too!

HBOC Week is our opportunity to shine the light on hereditary breast and ovarian cancer, impart knowledge, and save lives. Let’s join together to make a difference! On September 15, 2010, history was made with the unanimous passage of H Res 1522, the Congressional resolution declaring the first-ever National Hereditary Breast and Ovarian Cancer (HBOC) Week and … + read more

July 20, 2011

The critical need for ovarian cancer prevention research

In 2008, FORCE surveyed our community to establish hereditary cancer research priorities. One of the top four priorities was the development of new cancer prevention options. An important step in designing research is determining whether there is a need and whether or not the target population would enroll in the study.  We conducted a survey … + read more

July 12, 2011

Prioritizing research for metastatic hereditary cancer

There is a need for more treatment options for hereditary cancer, and the need is dire for women with metastatic hereditary breast cancer who make up a small subset of the larger breast cancer population. To better understand advanced hereditary breast cancer and to advocate for more research and better treatment options, FORCE conducted a … + read more

July 6, 2011

Keeping the lights on

Announcing the appointment of Barbara Pfeiffer as our new pro bono CEO at the opening session led to a great buzz during our conference. We’ve been barraged with questions ever since. Many people anxiously approached me to find out if I am ill and if I am okay with the change. I know that in … + read more

June 30, 2011

Why we need a hereditary cancer research fund

One of my favorite moments of the FORCE conference was having the honor to announce the FORCE Hereditary Cancer Research Fund. Below are some highlights from my presentations that mention this new and important FORCE initiative.   “Awareness and advocacy lay the groundwork for building our community and making sure that the needs of our group … + read more

July 24, 2008

Helping Hereditary Cancer Research: Participating in Research Studies

People frequently ask me what can be done to promote hereditary cancer research. Given the fact that our population is relatively small, and there are few research studies specifically for our community, connecting willing and eligible participants to open research studies is a critical piece of the work FORCE does to support research. If researchers … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered