FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘Genetic counseling’

October 25, 2016

Guest Blog: Genetic Variants of Uncertain Significance

by Nancy Ledbetter Early on in my genetics nursing career, I remember explaining the possibility of a variant of uncertain significance (VUS) to a patient, who laughed and said, “Variant of uncertain significance? That sounds like something out of Monty Python!” I had to admit she had a good point. It sounds like a ridiculous … + read more

September 30, 2016

HBOC Week Special: Inherited Mutations in BRCA1/2 and Related Genes More Common Than Expected in Men with Advanced Prostate Cancer

Guest blog by Heather H. Cheng, MD, PhD Researchers have long been aware that prostate cancer carries a substantial familial risk. New data (Robinson, et al Cell 2015) from the Stand Up To Cancer-Prostate Cancer Foundation International Dream Team collaborative group examined the genetic sequence of 150 tumors from men with advanced, hormone-resistant, metastatic prostate … + read more

September 6, 2016

Ovarian Cancer Survivor Survey Results: Education is Key to Informed Decision-making

FORCE’s KNOW MORE campaign helps women diagnosed with ovarian, fallopian tube, or primary peritoneal cancer make informed decisions about genetic counseling and testing for inherited mutations. To better understand their information needs, we launched a survey for women with ovarian cancer. Over 1,600 women completed our survey. This blog continues our series on survey results. How … + read more

June 17, 2016

National Task Force Guideline Gaps Hinder Access to Genetic Testing

by Lisa Schlager Nearly a million Americans carry an inherited BRCA mutation associated with hereditary breast, ovarian cancer, and related cancers (HBOC) and it is estimated that 2.3 million women in the U.S. are at high risk for breast cancer due to family history. A number of other genetic mutations have also been linked to … + read more

June 2, 2016

Results from the KNOW MORE Survey: Genetic Counseling and Testing in Women with Different Types of Ovarian Cancer

KNOW MORE is a campaign designed by FORCE to help women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We kicked off the effort by launching a brief survey to better understand how women with ovarian and related cancers make decisions about genetic … + read more

May 27, 2016

Blog: What Do the New Guidelines from the National Comprehensive Cancer Network Mean For You?

by Lisa Rezende, PhD People with hereditary cancer face many decisions, such as whether or not to have genetic testing, choosing the best type and frequency of cancer screening, and whether or not to manage cancer risk through surgery. Health care providers look to national guidelines to give their patients advice as they make these … + read more

April 25, 2016

Receive Personalized Resources and Support Quickly and Easily Through FORCE’s New Peer Navigation Program

by Wendy Demming, FORCE Peer Navigator Volunteer I wanted to be a Peer Navigator because it is important for me to help others who are going through an overwhelming diagnosis. I remember being desperate for credible information, and wanting to talk to others who had been in a similar situation. I was so grateful when … + read more

March 17, 2016

Ovarian Cancer Survivors with a Negative Genetic Test Result in the Past May Benefit from Additional Genetic Counseling/Testing

KNOW MORE is a new campaign designed by FORCE to inform every woman diagnosed with ovarian, fallopian tube, and primary peritoneal cancer about national guidelines on genetic counseling and testing for inherited gene mutations. We kicked off the campaign by launching a brief survey to better understand how women with ovarian cancer make decisions around … + read more

October 1, 2015

Guest Blog: An HBOC Week Message from Representative Wasserman Schultz

By Representative Debbie Wasserman Schultz I’m honored to have an opportunity to work with FORCE to promote awareness about Hereditary Breast and Ovarian Cancer. FORCE plays a crucial role in the cancer awareness and advocacy community, particularly for those of us who have been personally affected by genetic cancers. We share the fundamental belief that … + read more

September 27, 2015

Beyond Awareness: Working to Improve Outcomes for People Facing Hereditary Cancer

This week we mark National Hereditary Breast and Ovarian Cancer (HBOC) Week, and on Wednesday, National Previvor Day. This awareness campaign acknowledges the over one million people and families in the United States affected by hereditary cancer, due to a BRCA, PALB2, PTEN, ATM or other mutation linked to these cancers or a strong family history … + read more

August 24, 2015

XRAYS Program Looks Behind the Headlines to Make Sense of Cancer Research

FORCE is proud to launch our new program, eXamining the Relevance of Articles for Young Survivors (XRAYS). Funded by the Centers for Disease Control (CDC), the XRAYS program was developed to meet a growing need as more and more medical research articles on breast cancer are making the headlines. With the rise of social media, more consumers are turning … + read more

June 2, 2015

An Advocacy Win for Cancer Survivors Facing HBOC

  We frequently mobilize our community to challenge health policy barriers to medical care. It’s always gratifying when we are able to report wins, when FORCE organized and amplified your voices to affect positive change. Clarification of guidelines paves the way for eligible cancer survivors to receive BRCA counseling and testing at no cost Guidelines … + read more

March 5, 2015

Regulating the Next Generation of Genetic Tests

Gene sequencing – also known as genetic testing – is the process scientists use to analyze DNA in search of mutations and variations in an effort to discover more about the connection between genes and traits, health and disease. Since the discovery of BRCA 1 in 1994, the sequencing of genes to find mutations has … + read more

December 15, 2014

Education, Medical Decisions, and Regret

Note: This article was originally posted in 2014 and updated on 05/12/16. An AARP article that contained an interview with rock stars Sheryl Crow and Melissa Etheridge brought awareness to the individual and personal nature of genetic testing, hereditary breast and ovarian cancer (HBOC), and the medical challenges that accompany inherited breast cancer. The article also led to … + read more

March 3, 2014

Health Care Providers Can Help Accelerate Hereditary Cancer Research

Why HBOC research is important Hereditary cancers constitute a small subset of a larger disease state. About 7% of breast cancers and 18% of ovarian cancers are due to a BRCA mutation. The HBOC community shoulders a disproportionate cancer burden, facing lifetime cancer risks that are higher than any other known population. Our cancers tend … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered