FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘breast cancer early detection’

March 8, 2019

A Deep Dive into Disparities: The Challenges and Opportunities of Reaching Out to the Underserved

By Amy Wu I recently had the privilege of spending two days at a brainstorming session with a group of doctors, scientists, researchers, advocates and fellow survivors (myself included), all of us a sounding board for the California Breast Cancer Research Program. The goal was to identify and create research projects on breast cancer. One … + read more

January 10, 2019

Book: The Big Discovery

My Family History In 2003, my mother was diagnosed with stage IV metastatic breast cancer and unfortunately lost her four-year battle at the young of age 52. Shortly after my mother’s battle with cancer, my father was diagnosed with prostate cancer at age 53. He elected to have his prostate removed and is currently doing … + read more

May 11, 2018

Battling BRCA: International Conference in Iceland on BRCA and Cancer

by Kristín Hannesdóttir and Anna Margrét Bjarnadóttir On March 10th, BRCA Iceland hosted its first international conference. Sue Friedman, Executive Director, Founder of FORCE, was the keynote speaker. In June 2017, we attended the FORCE conference in Orlando. We barely knew each other at the time, but we are both BRCA2 carriers, have lost several … + read more

March 1, 2017

Making Postmastectomy Decisions: The Right Input is Critical

Note: This is part 3 of a 3-part series related to our recent XRAYS review on Roni Caryn Rabin’s New York Times piece, “‘Going Flat’ After Breast Cancer.” In part 1 of the series, FORCE volunteer, Robin Karlin discusses her decisions after mastectomy, and her feelings post-reconstruction. In part 2, Sue Friedman talks about the affect of … + read more

February 15, 2017

Guest Blog: Join FORCEs at our 2017 HBOC Conference!

by guest blogger, Jane E. Herman When I boarded the flight for my first trip to Orlando in June 2011, my goal was not to hug Mickey Mouse or visit Cinderella’s Castle. Rather, my destination was the sixth annual Joining FORCEs Conference. Not knowing anyone who would be in attendance, I was – not unexpectedly … + read more

January 12, 2017

Update on Hormone Therapy for Previvors

by Alexandria Groves and Lisa Rezende, PhD National guidelines recommend that women with mutations in BRCA have risk-reducing removal of their ovaries and tubes, (also known as salpingo-oophorectomy or RRSO) either between the ages of 35-40 or after they are done having children. RRSO greatly reduces the risk of ovarian, fallopian tube, and peritoneal cancer, … + read more

December 8, 2016

Tips for Sharing the Gift of Knowledge with Relatives

by Sue Friedman Members of our community who have already had genetic testing often ask for advice on how to speak about it to their relatives. Some common barriers to testing that we hear voiced by people are: concern over the cost of testing access to genetics experts family communication challenges With the holidays coming, … + read more

December 6, 2016

What Does the Recent Election Mean For the HBOC Community?

by Lisa Schlager The results of the 2016 election and the pending change in administration have triggered renewed focus on the future of healthcare. FORCE released an official statement on the election’s impact on the HBOC community and I hope to address additional issues here. The hereditary cancer community has good reason to be concerned. … + read more

July 5, 2016

Cancer Screening Guideline Loopholes and Confusion Jeopardize Coverage of Services: Part II of Access to Care Series

by Lisa Schlager Over 2 million women in the U.S. are at high risk for breast cancer due to family history. Additionally, nearly a million Americans carry an inherited BRCA mutation and a number of other genetic mutations have also been linked to increased risk of breast, ovarian and other cancers. Several organizations develop cancer … + read more

May 27, 2016

Blog: What Do the New Guidelines from the National Comprehensive Cancer Network Mean For You?

by Lisa Rezende, PhD People with hereditary cancer face many decisions, such as whether or not to have genetic testing, choosing the best type and frequency of cancer screening, and whether or not to manage cancer risk through surgery. Health care providers look to national guidelines to give their patients advice as they make these … + read more

May 19, 2016

Updates in Research on Treating Hereditary Cancers

Note: This post which was originally published 08/4/15 was just updated on 05/19/16. In December 2014, the FDA approved the first targeted therapy for people with BRCA mutations. Lynparza, a type of medication known as a PARP inhibitor, was approved for women with a BRCA mutation to treat advanced ovarian, fallopian tube, or primary peritoneal cancer that has progressed after … + read more

March 2, 2016

NCCN Summit Explores Patient Perspectives of Value in Cancer Care

by Lisa Schlager Our January 8, 2016 blog introduced the emerging topic of value in cancer care and the importance of public participation in this discussion. On December 1, 2015, the National Comprehensive Cancer Network (NCCN) hosted a Patient Advocacy Summit titled Value in Cancer Care – Patient Perspectives in Washington, DC.  I was fortunate … + read more

January 29, 2016

Mammogram Update: Latest Screening Guidelines Finalized But Not Implemented

by Lisa Schlager Few health issues have stirred as much debate as the guidelines surrounding screening mammograms for average-risk women. Recent changes in national guidelines threatened access to mammograms for women age 40-49. FORCE worked together with other groups to pass laws that assure continued access to mammograms for women in this age group. At … + read more

January 8, 2016

Value in Cancer Care: Including Consumers in the Dialogue

by Lisa Schlager, Vice President of Policy and Community Affairs Value and access to appropriate health care is of vital importance to patients and their families, particularly as cancer diagnoses continue to rise—up more than 20 percent in the past decade—and health care costs steadily increase. In this environment, more attention is being paid to … + read more

October 1, 2015

Guest Blog: An HBOC Week Message from Representative Wasserman Schultz

By Representative Debbie Wasserman Schultz I’m honored to have an opportunity to work with FORCE to promote awareness about Hereditary Breast and Ovarian Cancer. FORCE plays a crucial role in the cancer awareness and advocacy community, particularly for those of us who have been personally affected by genetic cancers. We share the fundamental belief that … + read more

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