FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘brca research’

February 22, 2012

Exclusive gene patent on BRCA: Adding burden to an already overburdened community

The United States Patent and Trademark Office (USPTO) is gathering information on the impact of gene patenting on genetic diagnostic in order to prepare a report to Congress under the America Invents Act. The USPTO is soliciting public commentary on this important issue by organizing public hearings. This past Thursday, Lisa Schlager, Vice President of Community Affairs and Public Policy … + read more

February 1, 2012

We Need Your Help Now! An urgent update on incredibly important research for women at high risk of ovarian cancer

If you were one of the high-risk women who participated in the large GOG-199 research study, thank you for helping advance critical research that will lead to better health outcomes for our community. Your continued participation in a related study, which is easy and involves only a simple annual questionnaire, will help researchers continue this … + read more

January 18, 2012

Thirteen Ways FORCE will Serve Our Community in 2012

On New Year’s Day we celebrated FORCE’s 13th birthday! Over the course of this year, we will highlight the significance of this milestone with blogs that emphasize the theme of “13.” As my first blog of the new year, I am excited to share 13 things that FORCE will do to serve the hereditary cancer … + read more

December 31, 2011

Happy New Year and Happy Birthday to FORCE

Tonight at just after midnight, FORCE and this community will celebrate our 13th birthday. It is hard to believe that it has been thirteen years since I founded FORCE, on New Years. As the new year rang in, I was sitting at my computer, fresh out of treatment and prophylactic surgery, posting on a brand-new … + read more

December 24, 2011

Holiday Guest Blog: Joanna Rudnick

FORCE member Joanna Rudnick, producer of the documentary In the Family  wrote the following special holiday blog. Of Holiday Miracles and Possibilities by Joanna Rudnick This time of year is all about the great miracles and the infinite possibilities. For most of us, miracle and possibility are the last words that come to mind when we … + read more

December 13, 2011

Best Gifts of the Season

The holidays are a very sentimental time for me; there are a lot of reminders of my hereditary cancer journey. The season is about so much more than gift-giving. Nevertheless, I thought that it was appropriate and timely to share my all-time best gifts in my blog. The most romantic gift I ever received In late … + read more

November 8, 2011

Guest Blogger: Reporter Stacey Sager

Reporter Stacey Sager wrote the following guest blog. Many FORCE members followed her personal and moving story in the recent video that aired on WABC-TV in New York City. What I’ve Learned from “Being BRCA” by Stacey Sager They say lightning doesn’t strike twice. Well, any of us who test positive for a BRCA1 or BRCA2 … + read more

October 6, 2011

HBOC Week was a Success: Let’s Sustain Awareness All Year Long

The squeaky wheel gets the grease. We have heard that saying so many times it has probably lost its true meaning. “Breast cancer awareness” and “ovarian cancer awareness” are terms that also can lose meaning over time. What does awareness mean? Does it really help in any way? Can awareness change behaviors? Can it save … + read more

July 20, 2011

The critical need for ovarian cancer prevention research

In 2008, FORCE surveyed our community to establish hereditary cancer research priorities. One of the top four priorities was the development of new cancer prevention options. An important step in designing research is determining whether there is a need and whether or not the target population would enroll in the study.  We conducted a survey … + read more

July 6, 2011

Keeping the lights on

Announcing the appointment of Barbara Pfeiffer as our new pro bono CEO at the opening session led to a great buzz during our conference. We’ve been barraged with questions ever since. Many people anxiously approached me to find out if I am ill and if I am okay with the change. I know that in … + read more

June 30, 2011

Why we need a hereditary cancer research fund

One of my favorite moments of the FORCE conference was having the honor to announce the FORCE Hereditary Cancer Research Fund. Below are some highlights from my presentations that mention this new and important FORCE initiative.   “Awareness and advocacy lay the groundwork for building our community and making sure that the needs of our group … + read more

July 24, 2008

Helping Hereditary Cancer Research: Participating in Research Studies

People frequently ask me what can be done to promote hereditary cancer research. Given the fact that our population is relatively small, and there are few research studies specifically for our community, connecting willing and eligible participants to open research studies is a critical piece of the work FORCE does to support research. If researchers … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered