This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

| More

13 Important Facts About Our Hereditary Cancer Research Fund

March 1, 2012

How many times have you been asked for YOUR INPUT on which types of research should be supported? As an important stakeholder in cancer research, it is your right to help guide the direction of research. Please help us advance hereditary cancer research by: reading the 13 facts listed below about our research fund, completing our short survey, and  making a financial contribution to help us realize our goal.

  1. Ours will be the first and only research fund by and for the community affected by hereditary breast and ovarian cancer.
  2. By completing our research priority survey, your input will help shape our research direction by helping to prioritize the research that will most likely succeed and improve patient care.
  3. HBOC individuals and families represent an overburdened and under-resourced community. We require unique research that provides information and evidence-based solutions for the extraordinary issues we face.
  4. As people with inherited cancer predisposition, we are significant stakeholders in cancer research but our input has been limited. Although some cancer research includes consumer input to guide direction and relevance, panels often do not include advocates familiar with hereditary cancer.
  5. We have a responsibility to future generations to develop better options so our children will not have to face the fear of inherited cancer or the agonizing decisions that face us today.
  6. Targeted funding for hereditary cancer research is virtually nonexistent. Many foundations support general breast or ovarian cancer research; funded studies typically focus on a single cancer type and may miss critical clues linking breast, ovarian, pancreatic, prostate, and other hereditary cancers.
  7. Government research funding is limited and the process is lengthy. Competition for cancer research grants has increased over the last few years as government research funding has flattened. Government-funded research often does not start for many years after a study concept is first proposed.
  8. Some groups discourage genetic testing, screening, and cancer prevention, which can shift research focus away from hereditary risk, prevention and early detection.
  9. To initiate research specific to hereditary cancer and rapidly begin funding critical research, we must raise $100,000 and our goal is to endow our fund by the end of 2012.  We still have far to go to achieve this goal and need your help.
  10. Current options for prevention, detection, and treatment of hereditary cancer are inadequate. Early detection is not always early enough; too many people are diagnosed with and losing their lives to hereditary cancers. Chemoprevention or prophylactic surgeries reduce cancer risk, but may cause other health problems or impact quality of life.
  11. FORCE is in a unique position to identify and expedite research that will best serve high-risk individuals and families. We advocate solely for the needs of the hereditary cancer community and its research priorities.
  12. FORCE has a 13-year track record of providing high-quality programs and delivering information, support and resources to the community affected by hereditary breast and ovarian cancer. During that time our mission has never wavered. We have remained focused on improving the lives of people affected by hereditary cancer. Our research fund will serve the same mission.
  13. FORCE leadership includes community stakeholders who have the expertise, understanding of the challenges we face, and a passionate commitment to address the critical need for more research to overcome these challenges.
Visit the FORCE website to learn more about our research fund.

Tags: , , , , , , , , , , , , , , , , , , , , , , , , ,

One Comment

  1. Anonymous says:

    Wonderfu!! Points!

Leave a Reply

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered