FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Research advocacy

July 9, 2020

Advocacy Through Writing and Research

Bryna Siegel Finer, PhD As an academic researcher, I am currently recruiting survey and interview participants for two new studies. The first looks at how patient education materials describing chemotherapy can better equip patients to understand how their bodies might be different after chemo. I invite you to take the survey and tell us what … + read more

August 7, 2019

FORCE Advocates Attend Project LEAD

by Jill Holdren; with Ana Lopez, Roxana Lopez, Debbie Setuain, and Judy Plymale Introduction Five FORCE advocates—Ana Lopez, Roxana Lopez, Debbie Setuain, Judy Plymale and Jill Holdren—recently had the opportunity to gather with more than 55 other advocates to attend Project LEAD, the National Breast Cancer Coalition’s (NBCC) prestigious week-long training on the science of … + read more

August 27, 2018

FORCE Co-Authors Paper on Engaging Patient Advocates in Research

by Lisa Schlager A year ago, I wrote a blog titled “Working with Industry to Increase Patient Engagement in Drug Development.”  In it, I shared that FORCE is a member of Bayer Pharmaceutical’s 5-member Patient Advocacy Advisory Council (PAAC), a novel partnership between this leading drug developer and the patient advocate community. From late 2016 … + read more

August 17, 2017

Working with Industry to Increase Patient Engagement in Drug Development

by Lisa Schlager Historically, the only role for patients in cancer research was as a subject enrolled in a clinical trial. Research generally focused exclusively on outcomes such as overall survival and neglected to account for variables such as side effects and quality of life. Engaging patients as advisors in research—reviewing study design, informed consent … + read more

April 10, 2017

Introducing Myself to the FORCE Community

by Piri Welcsh, PhD I am honored to begin a new phase of my career as FORCE’s Vice President of Education. I’d like to introduce myself by telling you a bit of a long story. I will tell this over time in several parts. The story is that of the “The Race” to Clone BRCA1. … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered