This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Archive for 2009

December 20, 2009

I Will Previve: Raychel’s Story

by Raychel Kubby Adler I have always felt as if I have a target on my back. A big red cancer bullseye. Most days it is just there, somewhere in my subconscious, and then there are the other days. The day the mammogram technician kept taking picture after picture of the same square inch of … + read more

December 15, 2009

BRCA2 and Fanconi Anemia

by Rachel Altmann Early one spring morning a baby girl was born. Her parents and her brother had eagerly awaited her arrival. She had a head of black hair with a spiral of white hair by her soft spot. Already in her first days of life the people around her could tell she was both … + read more

December 3, 2009

The community speaks out! Your thoughts on the USPSTF breast screening guideline changes.

Newly-recommended changes for breast cancer screening by the United States Preventive Services Task Force (USPSTF) are getting a lot of attention and proving to be controversial. The task force: Recommended against screening mammography for women ages 40–49. Recommended screening mammography in women older than 50 be performed  biennially rather than annually. Recommended against teaching or … + read more

November 10, 2009

Direct-to-consumer genetic testing: the latest FORCE testimony to SACGHS and FDA feedback

Recently FORCE submitted testimony to the Secretary’s Advisory Committee on Genetics Health and Society (SACGHS) about our continuing concerns about the need for government oversight of the marketing of genetic tests to consumers and health care providers.  Below is an excerpt from our testimony. Dear Distinguished members of the committee, I represent the lay advocacy group, Facing Our Risk of Cancer Empowered (FORCE), … + read more

July 17, 2009

FORCE and Health Care Community Letter in Support of the EARLY Act

The following letter was submitted by FORCE, members of our board of directors, and our medical advisory board in support of the recently introduced legislation known as the EARLY Act.  We are collecting names of people interested in signing on to the letter endorsing EARLY.  If you would like your name added to this letter … + read more

July 15, 2009

Voices: Courtney’s Adoption Story

by Courtney Zinszer I found my lump at 33. That led to my first mammogram, which was negative. Because the lump was growing, my doctor ordered an ultrasound, which was also negative. I insisted on a biopsy. Much to my shock, I was diagnosed with cancer. I then had a lumpectomy, chemotherapy and radiation. Not … + read more

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Call our Helpline

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FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered