FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Dealing with an Extra Helping of Stress

March 31, 2020

“Driving into the skid means accepting the anxiety you’re feeling for what it is and experiencing the fluttery feeling in your stomach,” Hurley said

Learning I Had Lynch Syndrome Helped Save My Life

March 4, 2020

After five years with no evidence of disease (NED), Wenora Johnson’s colon cancer returned and her oncologist recommended genetic testing. She tested positive for Lynch syndrome, an inherited syndrome associated with a genetic predisposition to different types of cancer. Today, Wenora is a three-time cancer survivor, advocate and FORCE volunteer. With Lynch syndrome Awareness Day … + read more

New Medicare Genetic Testing Policy: What Does It Mean to Me?

February 19, 2020

Recently, the Centers for Medicare and Medicaid Services (CMS) released their final National Coverage Determination (NCD) on a type of genetic testing called next-generation sequencing (NGS), which enables laboratories to examine multiple genes at once. The policy paves the way for national coverage of tumor biomarker testing and multigene panel testing for hereditary cancer in specific … + read more

FORCE Supports Broader Access to Genetic Counseling

January 28, 2020

by Lisa Schlager Genetic testing is an increasingly important and complex service that can inform medical decisions and improve health outcomes. National standard-of-care guidelines recommend genetic counseling with a qualified expert before and after genetic testing. FORCE agrees that talking to a healthcare professional who has expertise in cancer genetics before and after genetic testing … + read more

New PARP Inhibitor Approval for Pancreatic Cancer

January 6, 2020

On December 27th, the Food and Drug Administration (FDA) approved olaparib (Lynparza) – a type of targeted therapy known as a PARP inhibitor—for treatment of metastatic pancreatic cancer in people with a BRCA mutation.

FORCE Launches the New XRAY-Ovarian Cancer Program

November 19, 2019

by Teri Woodhull I am so excited for a new FORCE program called XRAY-Behind the Ovarian Cancer Headlines! My ovarian cancer was already advanced by the time it was diagnosed and I believe that research has played a big role in my nine-year survival. Admittedly, I’m a bit of a research junkie. I attend scientific … + read more

We All Love a Good Book or Movie

October 9, 2019

Some books and movies make us think.  Some make us laugh or cry. Some are educational and others are just plain fun.  And, then some do all of the above.  Below is a list of personal memoirs, self-help and reference books created to share information and stories of those who have experienced hereditary cancer. You … + read more

Book: LAST CUT

October 9, 2019

by Samantha Paige I missed half of my senior year of college for a thyroidectomy and radiation after a sudden thyroid cancer diagnosis weeks after my 21st birthday. I spent the following decade in and out of hospitals for follow-up testing, chronic migraines and PTSD-related anxiety, depression and panic attacks. At some point during that period, … + read more

Where’s FORCE?

October 7, 2019

by Lisa Schlager This issue of “Where’s FORCE?” features an overview of the many events in which FORCE staff and volunteers participated in recent months. May Supporting those affected by cancer is collaborative effort. The Cancer Community (C2) Awards honor a diverse and indispensable group, the unsung heroes of cancer care. This year, FORCE Executive … + read more

Luck Is More Than Just A Rainbow: A Previvor’s Story

October 2, 2019

The opportunity to have germline genetic testing coupled while having solid resources in place was my big lucky break. My “luck” has brought me immeasurable peace of mind for which I am deeply grateful.

My Experience As A Male Previvor

September 30, 2019

Note: In recognition of the last day of Prostate Cancer Awareness Month, the start of HBOC Week and in advance of Previvor Day, FORCE wants to remind people that men can be previvors too. Like women, men account for half of all mutation carriers. Male mutation carriers face challenges associated with their high risk for … + read more

Mystery Families and MRIs

September 24, 2019

by Piri Welcsh What is a ‘mystery family’ you may be thinking.  I guess you could define a mystery family in many ways.  Maybe it’s family with a mysterious past? A family who doesn’t know its origins or history? Or, maybe a family with a secret?  For me, a mystery family is a family with … + read more

The Gift of More Options

September 16, 2019

by Tanya Temkin Note: In honor of Ovarian Cancer Awareness Month, FORCE is partnering with AstraZeneca to raise awareness of genetic testing for women who are diagnosed with ovarian cancer. FORCE volunteer Tanya Temkin shares her personal story of how genetic testing affected her treatment options. Two and a half years ago, my friend Marcie … + read more

The Mastectomy Club

August 29, 2019

by Katie Spittal I’m sitting in the Delta lounge at LaGuardia airport in New York City. This members-only club offers me free food and Wi-Fi to enjoy before I make the short, yet long journey from the airport over the river and into Manhattan. I flew in from Indiana to support my baby sister—she is … + read more

My CDH1 Mutation and Why I Chose Preventive Gastrectomy

August 12, 2019

by Jonathan Grossman On January 4, 2018, my mom died of hereditary diffuse gastric cancer. She carried a CDH1 mutation that we only learned about after her diagnosis. Doctors diagnosed her with the disease roughly three years before she died. Originally, her doctors told her she had only months to live. The gene and cancer … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered