FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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FORCE Blog

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Archives

Anti-vaccine Hype is a Threat to People with Cancer

May 7, 2019

Cancer treatment is challenging enough, without the added threat of a measles outbreak caused by decreased vaccinations.

Improving Memory in Menopause: the IMPRES Study

May 2, 2019

By Joanna Marks Ask any woman who has undergone a risk-reducing salpingo oophorectomy (RRSO) about recovery and you will hear about both the physical and emotional challenges of this process. If ovaries are removed prior to a woman’s natural menopause transition, she will likely enter premature menopause. For many women, cognitive complaints (like difficulty concentrating … + read more

Where’s FORCE?

May 1, 2019

This issue of “Where’s FORCE?” features an overview of the many events in which FORCE staff and volunteers participated during the past few months. December December is often a slow time due to the holidays, but the FORCE team kept busy. Our research team—Executive Director Sue Friedman, Vice President of Education Piri Welcsh, and Director … + read more

We All Love a Good Book or Movie

April 11, 2019

Some books and movies make us think.  Some make us laugh or cry. Some are educational and others are just plain fun.  And, then some do all of the above.  Below is a list of personal memoirs, self-help and reference books created to share information and stories of those who have experienced hereditary cancer. You … + read more

Devin Sidell’s Lady Parts The Film

April 11, 2019

Devin Sidell is an actress and a previvor who is sharing her story in an upcoming dark comedy feature film called Lady Parts in order to bring more awareness and normalization to BRCA-positive women undergoing preventative surgeries. “I am an actress, an artist, a storyteller. Yet, I had never thought about turning my own story into art … + read more

Update: FDA Meeting on Breast Implant Safety

April 1, 2019

by Lisa Schlager Breast implant safety is a hot topic. We recently published an XRAYS review that shed some light on the importance of well-designed research and reliable information about breast implants. Last week, I attended and made public remarks at a 2-day meeting on breast implants hosted by the U.S. Food and Drug Administration … + read more

XRAYS Blog – A Deep Dive into Disparities: The Challenges and Opportunities of Reaching Out to the Underserved

March 8, 2019

By Amy Wu I recently had the privilege of spending two days at a brainstorming session with a group of doctors, scientists, researchers, advocates and fellow survivors (myself included), all of us a sounding board for the California Breast Cancer Research Program. The goal was to identify and create research projects on breast cancer. One … + read more

FORCE and Other Groups Meet with the Centers for Medicare and Medicaid Services (CMS)

February 22, 2019

by Lisa Schlager   In 2018, Medicare issued a National Coverage Determination (NCD) that added coverage of tumor testing for people with advanced cancer. Tumor testing can help those with advanced cancers choose treatment options. While the decision increases access to tumor testing, under some circumstances the policy will restrict access to genetic testing for … + read more

Celebrating Twenty Years of Support

February 20, 2019

On New Year’s Day, FORCE celebrated our 20th Anniversary! It is a great milestone, and we have accomplished so much along the way. Over the coming year, we will share articles about key accomplishments in each of our pillars: support, advocacy, research and education. FORCE was founded in 1999 as a support organization. Our first … + read more

Highlights from the 2018 Joining FORCEs Conference

January 31, 2019

Our Joining FORCEs conference informs, inspires and supports the hereditary cancer community. Judging from the feedback, last year’s October conference (our 11th!) once again successfully hit the mark. More than 700 people from the U.S. and other countries traveled to San Diego looking for more answers, deeper understanding, a stronger sense of community, clarity on … + read more

My BRCA2 Story: Mastectomy Without Reconstruction

January 22, 2019

by Marla Ruhana In the XRAYS review, Juliet’s story: No reconstruction is a post-mastectomy option, Juliet’s experience resonated with me. My mastectomy journey began in August of 2003, when my sister called and said, “Well, I’m one of the seven percent of women who get breast cancer under the age of 40.” She said that … + read more

Breast Implants: Conflicting Views and Hyped Headlines

January 19, 2019

by Piri Welcsh, PhD Since the early 1990’s scientists have researched whether silicone gel-filled implants increase the risk of connective tissue and autoimmune diseases. A recent study published in the Annals of Surgery and two accompanying editorials highlight the challenges associated with studying this connection. At the present time, there is no conclusive scientific evidence … + read more

Book: The Big Discovery

January 10, 2019

My Family History In 2003, my mother was diagnosed with stage IV metastatic breast cancer and unfortunately lost her four-year battle at the young of age 52. Shortly after my mother’s battle with cancer, my father was diagnosed with prostate cancer at age 53. He elected to have his prostate removed and is currently doing … + read more

A 20th Anniversary Message to Sue and to You: Words of Inspiration From FORCE

January 10, 2019

  Anniversaries are a time to celebrate, reflect, remember years past and to be hopeful for the future. New Year’s is always a nostalgic time for FORCE, as it is for many people, but the upcoming holiday is especially auspicious, because FORCE and our hereditary cancer community will turn 20! After two decades of raising awareness, … + read more

Probably Someday Cancer: Genetic Risk and Preventative Mastectomy

January 8, 2019

I agonized for years over whether to have a double mastectomy after I found out I have a BRCA2 mutation. I couldn’t get past the idea that I would be removing my breasts to reduce my risk of a disease I didn’t have — and may never get. My book, Probably Someday Cancer: Genetic Risk … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered