FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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FORCE Blog

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Archives

Starting a Conversation about My Family Health History

September 12, 2018

by Shannon Pulaski Ten days into my journey into parenthood, my own mother was diagnosed with ovarian cancer.  It shook my family’s entire world.  And when the earthquake settled, we realized we were only just beginning to understand our new reality.  We were fortunate that her doctor knew to test her for the BRCA gene.  … + read more

We All Love a Good Book or Movie

September 11, 2018

Some books and movies make us think.  Some make us laugh or cry. Some are educational and others are just plain fun.  And, then some do all of the above.  Below is a list of personal memoirs, self-help and reference books created to share information and stories of those who have experienced hereditary cancer. You … + read more

FORCE Co-Authors Paper on Engaging Patient Advocates in Research

August 27, 2018

by Lisa Schlager A year ago, I wrote a blog titled “Working with Industry to Increase Patient Engagement in Drug Development.”  In it, I shared that FORCE is a member of Bayer Pharmaceutical’s 5-member Patient Advocacy Advisory Council (PAAC), a novel partnership between this leading drug developer and the patient advocate community. From late 2016 … + read more

Book Blog: The Bucket List

August 16, 2018

by Georgia Clark Hi everyone, My name’s Georgia Clark, and I’m the author of The Bucket List, a new novel from Simon & Schuster. Twenty-five-old Lacey Whitman is blindsided when she’s diagnosed with the BCRA1 gene mutation: the “breast cancer” gene. Her high hereditary risk forces a decision: increased surveillance or the more radical step … + read more

Where’s FORCE? May and June

July 11, 2018

by Lisa Schlager “Where’s FORCE” features an overview of the many places our staff and volunteers have been and the many ways we have spoken out for the community in the past couple of months. May “Financial Toxicity” is a term used to describe the impact of health care costs on patients and their families. … + read more

Solving for Y: Reaching Men About Genetic Testing for Hereditary Breast, Ovarian, Pancreatic, Prostate And Related Cancers (HBOC)

June 17, 2018

by Sue Friedman Half of all people with an inherited BRCA, ATM, CHEK2, PALB2 or other mutation associated with HBOC are men. Nevertheless, the majority of awareness, research, and resources have focused on genetic testing in women. A recent article in JAMA highlights this disparity in BRCA testing between men and women. Emerging information on … + read more

XRAYS Blog: Me and My MSH6 Mutation: Ever Searching for Answers

June 14, 2018

by Aya It all started with Mother’s histopathology report on her partially resected small bowel. She had small bowel cancer. With my middle name being “I-want-to-know-more,” I asked for a pathology report after a post-op consultation with her surgeon where future management was discussed.  When I read the report at home, I noticed an aspect … + read more

Where’s FORCE? March and April

May 30, 2018

by Lisa Schlager “Where’s FORCE” highlights the ongoing efforts of FORCE staff and volunteers on behalf of the community. March As a member of the Bayer Oncology Patient Advocacy Advisory Council (PAAC), FORCE Vice President of Public Policy Lisa Schlager joined representatives from other advocacy groups and Bayer to review project proposals submitted by nonprofit … + read more

FORCE Earns 4-Star Rating on Charity Navigator

May 21, 2018

By Karen Kramer, Senior Vice President of Marketing We have some exciting news to share! Non-profit evaluator Charity Navigator has awarded FORCE our first 4-star rating. This is their highest possible rating and indicates that we exceed industry standards in a financially responsible way. Charity Navigator bases its ratings on non-profits’ financial health and commitment … + read more

Patrick Dempsey Presents CURE Media Ovarian Cancer Hero Awards

May 14, 2018

by Karen Kramer, FORCE Senior VP of Marketing “It’s a beautiful day to save lives.” That phrase was often said by Patrick Dempsey’s character—Dr. Derek Shepherd (aka “McDreamy”)—on Grey’s Anatomy.  It is a statement that resonates with me and has been a guiding principle for FORCE since the organization’s founding in 1999 by Sue Friedman, … + read more

Battling BRCA: International Conference in Iceland on BRCA and Cancer

May 11, 2018

by Kristín Hannesdóttir and Anna Margrét Bjarnadóttir On March 10th, BRCA Iceland hosted its first international conference. Sue Friedman, Executive Director, Founder of FORCE, was the keynote speaker. In June 2017, we attended the FORCE conference in Orlando. We barely knew each other at the time, but we are both BRCA2 carriers, have lost several … + read more

The Lights of May

April 27, 2018

Special note: In honor of Mother’s Day 2018, we’re recycling this post that was originally published in 2012. This inspirational post is as relevant as when first written 6 years ago.  by Sue Friedman We were late.  The last hint of twilight faded and although we were close to home, I was nervous.  It was … + read more

One More Reason Hoda Kotb is My Hero

April 23, 2018

by Karen Kramer I have loved Hoda Kotb for years. She has an infectious smile and an effortlessly positive outlook on life that I wish I could match.  After watching Hoda work hard for years, I am happy that she now has the job she deserves as the co-host of The Today Show. I start … + read more

Medicare Establishes National Coverage Policy for Next Generation Sequencing for Tumors

April 16, 2018

by Lisa Schlager The Centers for Medicare and Medicaid Services (CMS) recently finalized a National Coverage Determination (NCD) to provide Medicare beneficiaries living with advanced cancer (defined as “recurrent, relapsed, refractory, metastatic, and advanced stage III or IV cancer”) with coverage of FDA-approved or -cleared Next Generation Sequencing (NGS) diagnostic panels. These tests, also known as … + read more

PARP Inhibitors and Hereditary Cancer: What’s New?

April 12, 2018

by Sue Friedman PARP inhibitors are drugs designed specifically to treat cancers in people with certain inherited mutations, including BRCA1 and BRCA2, among others. These drugs block an enzyme – known as PARP – used by cells to repair damage to their DNA. Although these agents seem to be most effective in people with mutations—not just … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered