Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Take Action Now!

Advocacy > Issues > EARLY Act Brings Young Breast Cancer to Forefront


Newsflash

6/26/2020
Provided feedback on the “Preparing for the Next Pandemic” white paper asking that it address high out-of-pocket costs for oral anticancer drugs in future pandemic relief efforts.

5/11/2020
Joined the Partnership to Improve Patient Care in a letter to the new VP for Patient Engagement at the Institute for Clinical and Economic Review (ICER), offering to partner in advancing patient engagement and patient-centeredness at ICER.

5/8/2020
Expressed support for increased diversity in clinical trials, signing onto an effort urging congressional leadership to include text from HR 913, the CLINICAL TREATMENT Act, in the next COVID-19 relief bill.  

5/4/2020
Collaborated with the All Cancers Congress in asking U.S. governors to require that all health insurers allow for up to 90-day medication supplies during the COVID crisis.

EARLY Act Brings Young Breast Cancer to Forefront

Hereditary Cancer Awareness

Overview

The Breast Cancer Education and Awareness Requires Learning Young Act of 2009 (EARLY Act), HR 1740, was introduced by Representative Wasserman Schultz (D-FL), a breast cancer survivor who carries a BRCA2 mutation. FORCE participated in a coalition of groups providing guidance on the proposed legislation. Passed as part of the Patient Protection and Affordable Care Act in March 2010, the EARLY Act authorized a nationwide awareness and support campaign for women age 45 and under, including high-risk women, breast cancer survivors, and their doctors. The law also includes broad-reaching public and healthcare professional education campaigns, prevention research, and additional support for young women diagnosed with breast cancer. Initially funded for five years, the EARLY Act Reauthorization of 2014 was passed on December 28, 2014. 

Since that time, the initiative has brought about a number of programs including the CDC’s Bring Your Brave Campaign, Know:BRCA tool, and Program Support for Survivor Organizations--including the FORCE XRAYS Program, among other activities.

Advanced Reading

Search Policy Issues by Keyword

FORCE:Facing Our Risk of Cancer Empowered