Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Advocacy Accomplishments


Newsflash

3/21/2019
FORCE, with over 300 organizations and institutions, is supporting the Ad Hoc Group’s FY2020 recommendation of at least $41.6 billion in funding for the NIH.

3/19/2019
We signed onto a letter to Rep. Debbie Wasserman Schultz thanking her for her leadership on the PALS Act, preserving mammograms for women ages 40-49.

3/18/2019
FORCE, joined by interested orgs, submitted extensive 
comments
on the USPSTF draft guidelines on BRCA counseling and testing. 

2/19/2019
FORCE and a group of 20 stakeholders met with Medicare to urge continued coverage of genetic testing for all cancer survivors who meet guidelines. 

2/15/2019
The government funding bill President Trump signed into law today contained language directing the FDA to ensure breast density information is included in mammography reports.

1/31/2019
FORCE spearheaded a stakeholder letter to HHS and CMS expressing concern about interpretation of a national policy which places significant limits on hereditary cancer genetic testing under Medicare.

 

Establishment of National HBOC Week and Previvor Day

Hereditary Cancer Awareness

On September 15, 2010, in a unanimous show of support, the U.S. House of Representatives voted in favor of a Resolution sponsored by Rep. Wasserman Schultz (FL-20) establish National Hereditary Breast and Ovarian Cancer Week and National Previvor Day. National HBOC week is now recognized as an annual event, beginning the last Sunday in September and ending the first Saturday in October.  National Previvor Day occurs on the Wednesday of that week.  The timing—the transition between National Ovarian Cancer Awareness Month (September) and National Breast Cancer Awareness Month (October)—demonstrates the link between these two cancers. It is estimated that 20% of ovarian cancers are due to hereditary factors and approximately 5-10% of breast cancers are hereditary. FORCE initiated this effort to raise awareness and highlight the impact of these hereditary cancers. 

FORCE:Facing Our Risk of Cancer Empowered