Financial burden affects quality of life of cancer survivors
https://www.facingourrisk.org/XRAY/financial-burden-on-survivors
Full article: https://onlinelibrary.wiley.com/doi/10.1002/cncr.29808/abstract
Cancer-related financial burden can keep survivors from getting the care that they need, yet how this burden affects mental and physical health is still unknown. A study found that almost one-third of cancer survivors report having financial burden; those most likely to be affected were under age 65, female, members of racial or ethnic minority groups, and people who lack access to adequate insurance. (5/17/16)
Questions To Ask Your Health Care Provider
- My health insurance denied coverage for my medical care, how do I file an appeal?
- What will be my out-of-pocket costs for treatment? Are there any less expensive options?
- My insurance is covering my treatment but I still have a lot of out-of-pocket costs. Are there any resources that can help me?
- Do you work with patient navigators, oncology social workers or financial counselors who can help me cope with the financial burden of my cancer care?
- What organizations or patient assistance programs can help provide me with financial assistance?
- What are the financial consequences of cancer treatment?
Open Clinical Trials
- NCT03572374: Talking to Employers and Medical Staff About Breast Cancer Treatment and Your Job (TEAMWORK Study). The purpose of the TEAMWork study is to learn more about how being treated for breast cancer affects patients' employment. Researchers are testing an early version of a mobile app called TEAMWork (Talking to Employers And Medical staff about Work) that is designed to help breast cancer patients keep their jobs during and after treatment.
- NCT02333604: Cancer Experience Registry. This is a web-based registry that distributes surveys to better understand the social, emotional, physical, financial and decision-making experiences of cancer patients and their caregivers.
- NCT04960787: Financial Navigation Program to Improve Understanding and Management of Financial Aspects of Cancer Care for Patients and Their Spouses. This clinical trial examines a financial navigation program in helping patients and their spouses understand and better manage the financial aspects of cancer care.
- NCT04397016: Cost Talk: Discussing Cancer Care Costs. This study will look at how well a decision aid (used during a consultation) containing cost information about options, combined with clinician training about cost discussions and available financial resources help patients with slow-growing prostate cancer.
- NCT04931251: Addressing Cancer-Related Financial Toxicity in Rural Oncology Care Settings. The purpose of this study is to conduct a financial navigation program in 5 rural and 4 non-rural oncology practices in North Carolina and evaluate the effects of financial navigation on patient outcomes, including financial toxicity and health-related quality of life.
- NCT04766190: DISCO: A Patient Intervention to Reduce the Financial Burden of Cancer. The DISCO App is designed to improve, during the interaction, patient active participation and patient-initiated oncologist treatment cost discussions, and, in the short term, patient's treatment cost knowledge, self-efficacy for managing both cost and physician interactions, referrals, perceived financial toxicity (i.e., distress and material hardship); in turn, these will affect longer-term outcomes of financial toxicity and adherence.
- NCT04314284: Patient-Centered Intervention to Reduce Cancer Patients' Financial Toxicity. This study will look at an intervention to prompt screening for financial distress, facilitate discussions about care costs with for colorectal or gynecologic cancer patients, support health insurance selection, and ultimately reduce cancer patients' financial toxicity associated with cancer care.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.