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Genetic Privacy Laws

There are laws that protect the rights of people with an inherited mutation or hereditary cancer.

HIPAA Privacy Laws

HIPAA includes a privacy rule that requires health care professionals to notify you about your privacy rights and how your information can be used. The privacy rule provides for the release of your medical information (including genetic test results) for certain specified purposes, including the release to insurance companies for payment. However, in most instances, the privacy rule requires your permission before your health information can be shared with individuals or organizations. It is important to read and understand your health care providers’ policies and any medical release forms before signing them.

If you believe that your health information privacy rights have been violated, you may file a complaint with Office for Civil Rights (OCR). OCR can investigate complaints against covered entities and their business associates.

updated 05/25/16

FORCE:Facing Our Risk of Cancer Empowered