South Carolina Network
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Welcome to the home page for our South Carolina Outreach group. Here you will find information on our local efforts to provide information, support, awareness, and advocacy for individuals and families affected by hereditary breast and ovarian cancer.
Our outreach coordinator is Bethanie Brown.
A note from Bethanie
My name is Bethanie and I am the new Outreach Coordinator of South Carolina. I am 41 and a mother of three teenagers. I was adopted but thankfully found mybirth mother 20 years ago and she was able to share the family history of breast cancer with me before her death at age 48. When I was 35 my doctors started early surveillance. No one ever mentioned to me there was a genetic test until 2 years ago when I relocated to Columbia where I was referred for genetic counseling 4 times, and finally I gave in. I tested positive for the BRCA2 gene mutation in 2009 and began looking at my options. After I was given my genetic test results I was so desperate to talk to someone who shared this experience. I felt like my friends didn't really get "it." I attended the FORCE conference in June this past yearand just knew this was the organization that wanted to hear our voices.Through my interaction with FORCE, I began to feel empowered to make my own decisions to impact my health. I became so thankful that I had knowledge in advance and could be proactive. I found a great set of docs in Charleston to do the natural breast reconstruction with the DIEP method. I had my surgery this past summer and am now "free of breast tissue." Which is a great relief.
Now, I want to give back what others gave to me and I want to develop a group in SC who gives to each other. My visionis that everyone that requests or wants it can have a support person to walk with them through their journey. Our group is new and we are just getting started. I am so excited!!!! I live in Columbia which I hope will be a central location for meetings and events. However, we can go to the greatest need. I hope you can attend our upcoming meetings. I look forward to meeting you and corresponding with all of you. Please email me with comments, questions and requests. email@example.com
BROCADE is a PARP inhibitor study for people with advanced BRCA-associated breast cancer. The study is open in Charleston at:
MUSC Hollings Cancer Center
Dr. Rita Kramer
173 Ashley Avenue BSB #102A
Charleston, SC 29425
Contact Robin Bostick at: 843-792-4271
For more information, visit the BROCADE Study website.
Become an Outreach Volunteer!! FORCE is looking for an Outreach Coordinator for your area. You'll help set up local meetings for FORCE members and assist in planning and setting up other events and activities. For more information, download About Outreach and contact Sandy Cohen, VP of Volunteer Programs, with any questions.
Check back soon for events and sign up above to receive local updates.
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This site has been made possible by a generous grant from Morphotek.