The ABOUT Network is a new opportunity to enroll every person in the United States affected by HBOC into research.
The ABOUT Network is the first-ever patient-powered research registry created and governed by and for people affected by HBOC. Members of the HBOC community decide the direction of the research. ABOUT is part of the National Patient-Centered Clinical Research Network (known as PCORnet).
Our goal is to enroll as many Americans with HBOC as possible into research to improve health outcomes. The more people who participate, the more we will be able to answer important questions patients and their doctors face every day.