Get Critical Health Info

Research Study Search Tool

Use our HBOC Research Search tool to find and participate in research focused on hereditaty cancers. Need assistance getting started?

Research & Clinical Trials > Study Search Tool > Surveys, Registries, Interviews

| More

Surveys, Registries, Interviews

ABOUT Patient Powered Research Network

Surveys, Registries, Interviews

ABOUT Patient Powered Research Network

The ABOUT Network is the first-ever patient-powered research registry created and governed by and forpeople affected by HBOC. ABOUT's goal is to improve outcomes for people affected by hereditary breast, ovarian, and related cancers (HBOC) through patient-powered research.

Patients enroll by filling out an initial health questionnaire and providing regular updates about their health. 

For more information, visit the ABOUT Network website

Identification and Analysis of Families With Genetic Susceptibility To Cancer Registry

Surveys, Registries, Interviews

Identification and Analysis of Families With Genetic Susceptibility To Cancer Registry

 

The research laboratory at the Abramson Cancer Center is studying genetic sources of cancer risk and currently has one of the largest collections (also called a registry) of families with known or suspected risk in the world. A number of research projects are performed in collaboration with this registry. Research participants receive a numerical identification number that protects their privacy. Collaborating centers do not have access to personal identifiers such as names and dates of birth because only the numerical identifiers are shared.

For more information visit www.basser.org/openstudies.

 

Patient-Driven Clinical Classification of Genetic VUS (Variants of Uncertain Significance)

Surveys, Registries, Interviews

Patient-Driven Clinical Classification of Genetic VUS (Variants of Uncertain Significance)

Did your genetic testing identify a Variant of Uncertain Significance (VUS)?
Do you want more information on what this variant means for you and your family?
With your family's help you can discover more about your genetic variant.

Visit the Find My Variant website

Long-Term Survivors of Ovarian Cancer (LTSOC)

Surveys, Registries, Interviews

Long-Term Survivors of Ovarian Cancer (LTSOC)

Some advanced-stage ovarian cancer patients are long-term survivors. These patients may provide the key to long-term survival and bring hope to all women with Stages III and IV ovarian cancer. This research project will look at features within tumors along with genetic, quality of life, and lifestyle features that predict for long-term survival for patients with Stages III and IV ovarian cancer. If you are a 8 year or more stage III or stage IV ovarian cancer survivor, your participation can help to improve the treatment, survival, and survivorship of all women.

Visit the study website for more information or to enroll. 

FORCE:Facing Our Risk of Cancer Empowered