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ABOUT Patient Powered Research Network

This study is open to:
  • Any person 18 or oder with a personal or family history of these cancers:
    • breast
    • ovarian, fallopian tube or primary peritoneal
    • prostate
    • pancreatic
    • melanoma
  • Any person who has tested positive for any of these gene mutations:
    • BRCA 1 or BRCA 2
    • PTEN or Cowden Syndrome
    • TP53 or Li-Fraumeni Syndrome
    • PALB2, ATM, CHEK2, BARD1, RAD51, BRIP1, CDH1, RAD50, NBN or other genes associated with increased cancer risk
  • Any person with blood relatives who have tested positive for any of the above genes
This study is not open to:

People with no personal or family history of cancer and no known inherited mutation in themselves or their family. 

ABOUT Patient Powered Research Network

ABOUT Patient Powered Research Network and Registry

Surveys, Registries, Interviews

Study Contact Information

The study is being conducted by researchers at the University of South Florida in collaboration with FORCE. Contact information: by phone at 1-866-632-2873 or by email

About the Network

The ABOUT Network is the first-ever patient-powered research registry created and governed by and forpeople affected by HBOC. ABOUT's goal is to improve outcomes for people affected by hereditary breast, ovarian, and related cancers (HBOC) through patient-powered research.

Patients enroll by filling out an initial health questionnaire and providing regular updates about their health. 

For more information, visit the ABOUT Network website

What the Study Entails

It takes 3 easy steps to enroll and contribute your health information to research.

  1. View consent form
  2. Agree to participate
  3. Complete a health questionnaire

You can log back in to your profile at any time to update your records.

Study Lead Investigator

Rebecca Sutphen, MD: University of South Florida
Contact information: by phone at 1-866-632-2873 or by email

FORCE:Facing Our Risk of Cancer Empowered