Get Updates

Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Our Role & Impact > Advocacy > FORCE Alliances

| More

FORCE Alliances

FORCE participates in many expert panels, committees, task forces and advisory boards to assure that the HBOC community's needs, priorities, and concerns are represented, and that critical gaps are addressed. We collaborate and partner with other organizations to help us achieve our goals.

Consortia

FORCE participates in consortia and alliances with other organizations to more effectively advocate for greater awareness, resources, and access to care.

  • Cancer and advocacy organizations joined together, driven by a vision to transform and improve the lives of women and men living with metastatic breast cancer. MBC Alliance members recognize that by collaborating, we can achieve far more than any individual organization could do on its own.

  • FORCE is a longstanding partner member of the Ovarian Cancer National Alliance's (OCNA). OCNA’s Partner Member Program creates a national network of ovarian cancer advocates and service providers across the country, united in the goal of caring for survivors and previvors of ovarian cancer.

  • FORCE is a partner in the Cancer Policy Institute hosted by the Cancer Support Community. The Policy Institute strives to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.



Panels and Advisory Boards

FORCE represents our community by participating on panels and advisory boards to help guide policy and research.

  • The Centers for Disease Control’s Advisory Committee on Breast Cancer in Young Women (ACBCYW), was created to increase knowledge of breast health and breast cancer among women under age 40. Sue Friedman is a member of this federal advisory committee.

  • The National Comprehensive Cancer Network (NCCN) develops standard-of-care guidelines in oncology. FORCE has participated as a member on the Genetic/Familial High-Risk Assessment: Breast and Ovarian Guidelines Panel since 2005.

  • NRG Oncology is part of the National Cancer Institute's Cooperative Group Program, facilitating research focused on gynecologic, breast, colon, and prostate cancer prevention, and quality of life. Since 2009, FORCE has participated on the Patient Advocacy and the Cancer Prevention and Control Committees.



Research Collaborations

FORCE is committed to accelerating HBOC-specific research. Through research collaborations, FORCE helps to identify, design, recruit for, and conduct research that will best serve individuals and families affected by hereditary cancers.

  • FORCE is partnering with Abbvie, a pharmaceutical company as they develop targeted therapy for BRCA-associated breast cancer. FORCE reviewed patient materials and we are spreading the word about BROCADE a PARP inhibitor study for women with advanced BRCA-associated breast cancer.

  • FORCE partners with AstraZeneca to accelerate HBOC research. FORCE reviewed patient materials and is spreading the word about SOLO1, SOLO, and OlympiA; studies to determine if an investigational PARP inhibitor therapy could be a successful treatment for women with BRCA-associated cancers.

  • FORCE partners with the Basser Research Center for BRCA. Basser focuses on BRCA1 and BRCA2 prevention, early detection, treatment and survivorship. This collaboration strengthens ties between people with BRCA mutations and Penn researchers devoted to finding new ways to prevent and treat BRCA-related cancers.

  • FORCE partners with AstraZeneca, a global biopharmaceutical company, as they develop targeted therapies for breast and ovarian cancer. FORCE advances science by providing patient insight, enhancing clinical trial recruitment and empowering women to know their risk for hereditary cancer.

  • FORCE is partnering with Clovis Oncology, a pharmaceutical company as they develop targeted therapy for ovarian and pancreatic cancer. FORCE is spreading the word about ARIEL and RUCAPANC; PARP inhibitor studies for people with these cancers.

  • FORCE is partnering with TESARO, a biopharmaceutical company as they develop a targeted therapy for BRCA-associated breast cancer and platinum-sensitive ovarian cancer. FORCE reviewed patient materials and we are spreading the word about BRAVO and NOVA; PARP inhibitor studies for women with these cancers.

  • FORCE is collaborating with the University of South Florida to build the ABOUT Network, the first HBOC Patient-Powered Research Network created and governed by and for the hereditary cancer community. The ABOUT Network will conduct large-scale patient-reported outcomes research.



ABOUT Network Partner Alliances

FORCE is building patient-powered research network and registry to accelerate research. Our goal is to enroll 10,000 people into the registry, build an inclusive governance structure, and assure diversity and representativeness in all aspects of the network. To accomplish this, we are partnering with other organizations to achieve our enrollment goals.

  • FORCE is a longstanding partner member of the Ovarian Cancer National Alliance (OCNA). OCNA’s Partner Member Program creates a national network of ovarian cancer advocates and service providers across the country, united in the goal of caring for survivors and previvors of ovarian cancer.

  • The mission of the Black Women’s Health Imperative is to advance health equity and social justice for Black women across the lifespan through policy and advocacy, education, research and leadership development. The Black Women’s Health Imperative serves on the ABOUT Network Steering Committee. 

  • Sharsheret supports young Jewish women and families facing breast cancer at every stage — before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism.

  • Young Survival Coalition is dedicated to the critical issues unique to young women and breast cancer. YSC serves on the ABOUT Network Steering Committee to assure that the concerns of young breast cancer survivors are represented in patient-centered outcomes research.



XRAYS Partnerships

  • Young Survival Coalition is dedicated to the critical issues unique to young women and breast cancer. YSC serves on the ABOUT Network Steering Committee to assure that the concerns of young breast cancer survivors are represented in patient-centered outcomes research.

  • Living Beyond Breast Cancer (LBBC), founded in 1991, is a national nonprofit education and support organization serving women and families affected by breast cancer. LBBC’s mission is to empower all women affected by breast cancer to live as long as possible with the best quality of life.
    http://www.livingbeyondbreastcancer.net/

  • Triple Step Toward the Cure raises awareness about triple negative breast cancer and provides support to those who have been diagnosed with the disease. The organization is dedicated to educating, encouraging and empowering women affected by triple negative breast cancer.
    www.triplesteptowardthecure.org  

  • The mission of Tigerlily Foundation is to educate, advocate for, empower and provide hands-on services and support to young women—before, during and after breast cancer. Tigerlily programs aim to end isolation and improve quality of life among young adult breast cancer survivors.
    http://tigerlilyfoundation.org/



Other Partnerships

  • FORCE is an Oncology Nursing News and Oncology Live Advocacy Partner working together to help spread the word about hereditary cancer issues to oncology practitioners. OncLive is the most comprehensive portal for today's busy healthcare professional, providing them with the resources and information they need to provide the best patient care.

  • FORCE has teamed with Breast Cancer Answers to host monthly Google Hangouts for the HBOC community. Breast Cancer Answers, a free patient education resource, records leading experts discussing a range of topics, from risk factors to survivorship.

Learn about our accomplishments and how you can help.

Recognize a Loved One

The FORCE Research Advocate Training (FRAT) Program is a basic educational course aimed at preparing people to become engaged in research advocacy on behalf of the hereditary breast and ovarian cancer community.

Personal Fundraising

FORCE is proud of the progress we have made in support, research and advocacy that better the lives or our community.

FORCE:Facing Our Risk of Cancer Empowered