FORCE - University of South Florida - ABOUT Collaboration
FORCE is partnering with researchers from the University of South Florida, Georgetown University, and Aetna on a five-year study funded by the National Institutes of Health (NIH) to understand the connection between genetic risk factors for breast cancer, choices for treatment and outcomes among 5,000 newly diagnosed breast cancer patients undergoing BRCA testing. The study builds on an existing partnership between this multidisciplinary team that recently enrolled nearly 4000 participants in this research network over a single year. The collaboration uses patient-reported outcomes and information from medical records to provide a "real-world" view of current care. As an advocate partner in the collaborative network, FORCE is playing a critical role in the research design, research questions, recruitment, methods and analyses.
Important goals of the ABOUT Network are:
- ensuring that the HBOC community has input into the network’s research
- reporting research results back to the community
- contributing all BRCA results into Clin-Var, the federally-funded, government-maintained, publically-accessible database for sharing information about variants and mutations in human genes
- coming soon…..the ability to include every individual from a HBOC family who wishes to join this consumer-driven research network
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