Welcome From Our Director of Education
- ABOUT Network
- Patient Centered and Real World Research
- 2014 Conference
- Live Life Empowered
- Uncertain or Negative Results
- Free the Data
- Multiple-Gene Panel Testing
- Voices of FORCE
- Matching Participants to Clinical Trials
- Weighing the Evidence
- What's New @ FORCE
by Lisa Rezende, PhD
As the new Director of Education at FORCE, I am thrilled to have the opportunity to combine my personal experience as a BRCA1 mutation carrier and my professional experience in biomedical research and science education to work for the benefit of the hereditary breast and ovarian cancer (HBOC) community. I am passionate about helping our community navigate through the amazing array of FORCE educational materials, developing new resources to meet the growing needs of families facing hereditary breast and ovarian cancer, and translating the latest research into information that people can use to make medical decisions and improve their health.
In this issue, we cover the different types of negative BRCA test results and review improvements in genetic testing that may help people to better understand their risk for cancer. You’ll also learn about our collaboration with University of South Florida researchers to create a “patient-powered research network” known as ABOUT. We will turn to members of our community to help us identify and prioritize the critical questions that people facing hereditary cancer need answered to make detection, prevention, treatment and quality-of-life health care decisions.
Read on page 2 about our first spring Live Life Empowered fundraiser and a preview of our 8th annual Joining FORCEs Conference.
If you have questions about hereditary cancer risk management, treatment, or research, I want to hear from you. Please contact me (lisar@ facingourrisk.org) with topics you would like FORCE to address on our website or in future newsletters. I look forward to learning what’s important to you to better serve our constituency.
Disclaimer: Health links are made available for educational purposes only. This information should not be interpreted as medical advice. All health information should be discussed with your health care provider. Please read our full disclaimer for more information.
This site has been made possible by a generous grant from Morphotek.