High-risk Breast Surveillance Resource Gaps
- FORCE Recommended Reads
- Update: PARP Inhibitor Research
- Brocade Study
- Personalizing Risk Assessment for BRCA1 and BRCA2 Mutation Carriers (Conference 2012 Recap)
- Genetic Testing in the Jewish Community—Are We Doing Enough? (Conference 2012 Recap)
- Breast Cancer Surveillance and Chemoprevention (Conference 2012 Recap)
- High-risk Breast Surveillance Resource Gaps
- Joining FORCEs Conference 2014
- Voices of FORCE and sidebar Conversations on the Impact of Hereditary Cancer in Our Lives
- Our New Collaboration with Basser Research Center
- Basser Research Projects
- What's New @ FORCE
High-risk women have unmet needs for resources, including:
- Inaccurate breast cancer risk assessment: Guidelines for breast cancer screening of high-risk women are different than those for averagerisk women. Too often, however, women who want to know their risk for breast cancer are not referred to experts with advanced genetics training who can best assess an individual’s risk.
- Incorrect information about screening and risk-management options: Many high-risk women are told that they are too young for breast screening. Others are unaware of recommendations for annual breast MRI and mammogram. Few people are informed about medications or research studies available to manage their high risk.
- Inadequate insurance coverage for breast screening: Many women lack insurance coverage or have high out-of-pocket costs for screening. Despite published guidelines, many women must appeal insurance company denials for breast screening.
- Insufficient support for and public awareness of screening: Women relate feeling anxious, isolated, or dismissed when seeking peer support for surveillance appointments. Media coverage of high-risk women frequently focuses on prophylactic surgery, ignoring other risk-management options and leaving gaps in public awareness.
FORCE is conducting a survey to document the extent of these gaps and measure preferences for resources and support. Thanks to a grant from Lilly, we are developing materials for high-risk women and health care providers about the importance of breast cancer screening and prevention. Visit facingourrisk.org/surveys for more information or to take our survey.
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