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Setting a Hereditary Cancer Research Agenda

by Sue Freidman

Research is our best hope for better options for future cancer prevention, detection, risk management, and treatment. All cancer research is important, but we need to assure that a portion of research is dedicated to hereditary cancers.

FORCE is committed to promoting research specifically for hereditary cancer. We need dedicated studies because these cancers are different than sporadic cancers in many key ways. Our cancers tend to occur at a younger age, our risk management options are different, and our tumors may respond differently to treatment. Environmental influences may affect us differently than those without hereditary cancer syndromes, and we are more prone to second and even third cancer diagnoses. We share risk with relatives and may also pass our risk to our children.

Have you ever wondered what you can do to help cancer research, and particularly hereditary cancer research? FORCE is offering you an opportunity to make a difference. Attend our annual conference and participate in our “Setting a National Agenda on Hereditary Breast and Ovarian Cancer Research” session.

We have invited representatives from the Centers for Disease Control and the National Cancer Institute to listen to and interact with us as we finally get a say in shaping the future of research for our community. The only way we can begin to advocate for the research we need is to show up in sufficient numbers and let the government agencies and researchers see that we are a united, focused and important community. Some organizations promote the belief that the hereditary cancer community is simply too small and too insignificant to warrant increased resources. We must prove them wrong!

Please join us in Tampa and be part of this historic conference, and particularly this session, as we help promote and shape the future of hereditary cancer research.

Birds of a Feather! FORCE Show-and-Tell Room

Show & TellFor those conference attendees eager to see what post-mastectomy bodies look like we are making it easier for you to share!

In response to feedback about how difficult it is to share reconstruction options in crowded bathroom stalls, this year’s conference will feature a show-and tell room for women to talk about their experiences after mastectomy.

This suite will feature a meet-and-greet room where women can talk about their experiences, and a private bedroom where they can share how they look.

For anyone who has ever faced mastectomy, you know how comforting it can be to see what others look like. If you have had mastectomy, need to have a mastectomy, or are considering your options with or without reconstruction, please consider visiting the show-and-tell room.

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