A Collaboration to Improve Continuum of Care
FORCE is collaborating with Celebration Health to better understand and address the issues surrounding long-term follow-up health and care in survivors and previvors. A frequent theme at FORCE meetings, conferences, and on our message boards is concern about what health care professional should follow high-risk women over the course of their lives. Little is known about the long-term health issues faced by members of our community, many of whom have undergone mastectomy, BSO, menopause, and in some cases, chemotherapy and radiation at a young age. In addition to an excessively high cancer risk, research suggests that our population may also face issues of fertility and cardiac health. Many FORCE members are frustrated when they are directed to their primary care providers for follow-up care after surgery or treatment, because few primary physicians have the experience or expertise to manage the specific concerns of mutation carriers.
FORCE is happy to be collaborating with Celebration Health to better understand and address these issues. The Florida Hospital Nicholson Center, located at Celebration Health, is recognized internationally for advanced robotic surgical training, while the Center for Hereditary and Genetic Syndromes offers patients a “circle of care” that is essential to long-term health and survival. The team’s holistic approach to wellness combines experts from many specialties, including breast, gynecologic, reconstruction surgery, medical oncology, and internal medicine. Women who have undergone surgical menopause, chemotherapy, or radiation benefit from a patient care program that addresses long-term cardiac, bone, and overall health care, and other issues that many health care providers don’t address, including metabolism, fitness, weight, sexuality, and emotional health.
Our collaboration includes research conducted at our 7th Annual Joining FORCEs Conference investigating sexuality, quality of life, and metabolic function in survivors and previvors. We also launched the first survey to assess the long-term follow-up health behaviors, concerns, and needs of women who have hereditary cancer risk.
For more information visit celebrationhealth.com.
Disclaimer: Health links are made available for educational purposes only. This information should not be interpreted as medical advice. All health information should be discussed with your health care provider. Please read our full disclaimer for more information.
This site has been made possible by a generous grant from Morphotek.