There are so many stories on FORCE and so many members willing to share their experiences. We hope these profiles can help you connect with our community and get advice from people like you!
I'm Brac1 positive with a strong family history of both Ovarian and Breast cancer. I am currently choosing surveillance at this time.
I'm more than my risk… some fun facts about myself:
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I am 33, married to an amazing man, Adam for 13 years, we have three daughters and one son. I have one sister Robin, 26. She hasn't been tested yet but does follow a high risk screening the same as me until testing shows otherwise. She has made the decision to wait to test. I am Italian on my mother's side and American Indian and English on my dad's side. My mutation came from my dad's side of the family. I found out my test results in 2009. I lost 3 aunts all sisters before age of 40. And their daughters diagnosed with Breast cancer in their 20s and 30s. Many other female relatives are Breast Cancer Survivors. I grew up being in fear of this as i approached adult hood, that it was a curse on the women in my family. Bad blood as the family calls it. Until one of my uncles went to discuss this with a Genetic counselor and learned of the Brca Genetic mutation. He tested positive, and a cousin tested positive for the same mutation, after her Breast cancer diagnosis at 31. Then numerous family members began to get genetic counseling and some chose testing. I have not decided yet on breast preventative surgery options yet i'm still unsure. I have been following a high risk surveillance schedule with my doctors. I had my first scare in 2009 and went through biopsy and the waiting. I learned i had Hyperplasia and a benign finding. All screenings to date have been okay. I still get nervous and worry with each visit. I have decided to have my ooph/hysterectomy at age 35. which is recomended by my gynoncologist for my family history. I am a previvor!
Not Knowing if my children, especially my 3 daughters have inherited this mutation from me was the hardest part so far for me. I went in shock initially with the results when that reality set in. Emotionally during my journey i found myself at odds with some family members which was hard too. It is hard to still explain this all to those who don't get it. I have found giving them the information and stepping back a while is best. I made my own decisions and my own choices. I was very lost in the beginning too overwelmed. I am greatful I found Force. I no longer feel alone.
I am very Thankful for all that Force has done for me. I no longer feel alone and overwhelmed. I find all my answers here at Force, on the help line and especially at the conference. I was so overwhelmed before I found Force. Everyone understands my feelings, my fear, my concerns, and are available to listen. I was very greatful I was able to attend the conference. The most rewarding experience for me was i was able to learn so much information to bring home to Tennessee and share with my family and friends.