There are so many stories on FORCE and so many members willing to share their experiences. We hope these profiles can help you connect with our community and get advice from people like you!
Actually finding out I have the BRCA mutation so I can do something about it! My genetic counselor has been fabulous & getting involved with FORCE!
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After loosing my mother, sister, and 2 aunts to cancer, I had the BRCA testing done. My tests showed the BRCA mutation, and I choose to have an oopherectomy right away. The biopsy of the ovaries did show pre-cancerous cells, so that was a great decision to have that surgery done. I have had one MRI guided breast biopsy which was the most painful thing I have every had done to this body. I have met with my oncologist and plastic surgeon and hopefully will be having a double mastectomy with a TRAM (using stomach tissues to re-create the breasts - like a tummy tuck), this winter.
No, except I would have liked to know about the testing sooner. A friend actually told me about the genetic testing as she and her sister had it done and had the prophayltic surgeries too.
I have become the Outreach Coordinator in Eau Claire, Wisconsin. I want to get the word out about the testing that is available and share my story.