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Voices of FORCE

There are so many stories on FORCE and so many members willing to share their experiences. We hope these profiles can help you connect with our community and get advice from people like you!

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Susie Schuermann, Coral Springs, Florida

Quick Info About Me

  Voices of Force

Age: 47

I realized I want to help other in the same situation.

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My journey

I am 47 years old, married 23 years with two wonderful boys 16 and 22. I found out I was BRCA 1 positive a week after Thanksgiving 2013. I wasn't sure what to do I didn't tell anyone but my husband that I was positive. I then did allot of research to help me decide what I was going to do. I knew this had to be my decision, I would have to live with my choice and it was my body. Two weeks before Christmas I decided I was going to have PBM and a complete Hysterectomy. I told my husband and he didn't agree with my choice, but I knew I was making the right decision.

I searched around met with many surgeons and plastic surgeons till I found the perfect ones and who I felt comfortable with. Then the next thing I did was had to let my family know. After I told my sisters I sent them my results in case they wanted to get tested.

January 28, 2014 was my first surgery which was my PBM with tissue expander s. Then May I had my implants put in and June I had a complete hysterectomy. November I had an adjustments to my implants.

The hardest part of my journey

The hardest part was I felt like there was no information out there, and also telling my family and then watching my sisters get tested and hoping they were negative. Also when my husband didn't understand why I would have surgery if I wasn't sick. Not having a support group during this process, there are so many for people who have cancer but not for people in my situation.

If I could do it over again

I wouldn't change anything I know I did the right thing for me, it may not be right for someone else but it was for me.

My participation with FORCE

I did like that I was able to go in the chat rooms and talk to people and find out information and what other people were going through.

Connect with others.

Our Chat Room

Our chat room allows you to communicate in real-time with others who have faced similar challenges. Check our chat room schedule to find out which weekly chat is right for you. Or, visit our Message Boards.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered