There are so many stories on FORCE and so many members willing to share their experiences. We hope these profiles can help you connect with our community and get advice from people like you!
Tested pos. for BRCA1 and BRCA2 2007. Choose increased surveillance and complete hysterectomy. Had a double mastectomy in Aug 2009,w saline implants
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My mother died of breast cancer at age 46. I was only 17.My mother had 2 younger sisters. Each had breast cancer once in their early 50's. Then one died of ovarian cancer. One died of Inflammatory breast cancer. I tested positive for BRCA1 and BRCA2 in 2007. I was 49. I choose increased surveillance and a complete hysterectomy. I was sent to an Oncologist for risk assestment. I saw him about every 6 months. I had either mammogram or breast MRI's every 6 months. Plus a yearly PX. In Aug 2009 started having pain and swelling in my right breast. Had a breast MRI. Had an abnormality they thought could be cancer. I was advised to have a double mastectomy ASAP. I did not have cancer. I did have Atypical ductal hyperplasia. In my case they felt was a precancerous condition. I did not have to have chemo or radiation. I have had tissue expanders and saline implants.
I had so much fear about pain and needing care from double mastectomy. It was not that painful nor did I need that much care. It was also so tough losing my mother and her 2 sisters.
I would have had the double mastectomy before I had to worry I had cancer. I wish I could have talked to more women who had been through this.
I started reading the stories about a year ago. I had so much admoration of the women who shared their stories
I am so thankful I had a husband who has been so loving and supportive through this journey. I am also thankful for the support of family and friends who have stood by me. Owe much graditude to my Oncology Doctor who helped me make all the right decisions.