Voices of FORCE

There are so many stories on FORCE and so many members willing to share their experiences. We hope these profiles can help you connect with our community and get advice from people like you!

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Barb R, Avon, OH

Quick Info About Me

 

Age: 55

Meeting some of the most amazing women as my OV CA was caught early thanks to BRCA testing; opportunity to take some control ;avoiding breast cancer

I'm more than my risk… some fun facts about myself:

Favorite book / authors:
The Bible

Favorite Song:
Piano Man, Billy Joel (yes, an old one)

Other favorites?
I am a dog lover and I am owned by two precious rescue dogs, who bless my life.

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My journey

Thanks to my brave sister, who is alive and well after two breast cancer bouts before 40, I chose to have the genetic testing and was also diagnosed BRCA1 positive in 2004. I moved quickly to have my ovaries/ tubes removed but I already had stage 2 OV CA. I soon learned that this was a blessing in disguise, to be diagnosed at an early stage, which is rare for OV CA. After the standard 6 chemo treatments, I was blessedly in remission for 7 years before my OV CA recurrence. I am now again in remission, aware that BRCA patients respond better to OV CA chemotherapy. I also chose the elective double mastectomy (now known as Angelina's decision)and pre-cancerous cells were found in 2005. The genetic testing has saved my life TWICE in my opinion. I give thanks to God for this.

FORCE is an amazing group and I am grateful for all that they do. I have attended the last two conferences in Orlando and I am definitely looking forward to Philadelphia in 2014. I have met some amazing friends through FORCE. Thank you.

The hardest part of my journey

Seeing others who are not considering the testing and praying that they do not regret their decision. Seeing fellow OV CA patients struggle through their treatments.

If I could do it over again

Attend the FORCE conferences sooner !!!! I was afraid to go alone in 2010, but took the bold step in 2011 and I've never looked back.

Ask more questions to my doctors about BRCA patients.

My participation with FORCE

FORCE is an amazing group and I am grateful for all that they do. I have attended the last two conferences in Orlando and I am definitely looking forward to Philadelphia in 2014. I have met some amazing friends through FORCE. Thank you.

Connect with others.

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FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.